American Epilepsy Society (USA)

Officers:
President
Susan Spencer, M.D. (2000)
Yale University School of Medicine
Lab. of Clinical Invest.-Neurology
P.O. Box 208018
333 Cedar St
New Haven, CT 06520-8018
Telephone: +1 203 785-3865
FAX: +1 203 737-2799
E-Mail:

First Vice President
Solomon L. Moshé, M.D. (2000)
Albert Einstein College of Medicine
1410 Pelham Parkway, S., K316
Bronx, NY 10473
Telephone: +1 718 430-2464
FAX: +1 718 430-8899
E-Mail:

Second Vice President
Thomas P. Sutula, M.D., Ph.D. (2000)
University of Wisconsin Dept. of Neurology
H6/570 CSC Madison, WI 53792
Telephone: +1 608 263-6617
FAX: + 1608 263-0412
E-Mail: @

Treasurerc
Ruben I. Kuzniecky, M.D. (2002)
University of Alabama
Epilepsy Center
1719 6th Ave S., CIRC 312
Birmingham, AL 35294-0021
Telephone: +1 205 934-3866
FAX: +1 205 975-6255
E-Mail:

Past President
Robert S. Fisher, M.D., Ph.D. (2000)
Barrow Neurological Institute
350 West Thomas Road
NRC 4th Floor
Phoenix, AZ 85013-4496
Telephone: +1 602 406-3886
FAX: +1 602 406-7161
E-Mail:

Board Members
Joan K. Austin, D.N.S., RN (2000-2002)
3040 Ramble Road W.
Bloomington, IN 47408
Telephone: +1 317 274-8254
FAX: +1 812 855-8025
E-Mail: :

Jacqueline A. French, M.D. (2000-2001)
Hospital of University of Pennsylvania
Dept of Neurology
3400 Spruce St
Philadelphia, PA 19104-4283
Telephone: +1 215 349-5166
FAX: +1 215 349-5733
E-Mail:

John W. Swann, Ph.D. (1998-2000)
12950 Hermitage Lane
Houston, TX 77079
Telephone: +1 713 770-3969
FAX: +1 713 770-4217
E-Mail:

Elaine Wyllie, M.D. (1998-2000)
Head, Pediatric Epilepsy Program
Cleveland Clinic Foundation
9500 Euclid Ave
Dept of Neurology - S52
Cleveland, OH 44195
Telephone: +1 216 444-2095
FAX: +1 216 445-6617
E-Mail:

Publications:
AES News and looking into publishing an electronic newsletter in 2001.

Information material published:
- monographs on specific topics; Patient Assistance Program brochure
- Annual Report on AES activities.

Meetings held in 1999:
- AES Annual Conference- Orlando Florida, Dec. 1999
- Conference on Curing Epilepsy- collaborative project with the Epilepsy
Foundation, the National Association of Epilepsy Centers, and the NIH.

Activities in relation to the Global Campaign Against Epilepsy:
The AES is working on an external communications strategy. We hope that we will be able to identify strategies that will support the Global Campaign.

Summary statement:

• The AES would like to publicly thank and recognize the many dedicated and committed volunteers who make things happen in AES. In addition, the strong partnership enjoyed with our corporate sponsors is extremely important to AES. From the successful exhibit hall to year-round educational activities, AES corporate sponsors are an important part of the team.
• AES partnership philosophy extends to relationship with other professional organizations. AES has developed a formal collaboration that includes both the American Academy of Neurology and the Epilepsy Foundation. AES always enjoyed a strong partnership with EF and continue to look for ways to leverage both organizations' resources in the most effective and efficient way. Our collaborative efforts extended this year to include the National Association of Epilepsy Centers (NAEC) and Citizens United for Research in Epilepsy (CURE) as we jointly supported the White House initiated conference produced by the National Institutes of Neurologi'cal Disorders and Stroke (NINDS).
  
• During 1999 AES continued to refine programs for research and for epilepsy clinicians, And now support graduate students proposing research projects in epilepsy. AES has renewed support for AES research grants and fellowships, and have established a new collaborative research initiative grant to encourage pilot projects in basic or clinical areas involving more than one institution and more than one AES member. Education has been a key strategic goal for the Society. AES support and sponsor educational conferences throughout the year in all regions of the country; main educational vehicle remains the Annual Meeting. The Society recently received the highest level of CME certification. This year AES has initiated several programs for epilepsy clinicians. Along with the practice management column in AES News there was a course on managing epilepsy practice at the Annual Meeting. Some key AES proceedings and programs have been posted on the Web site.
• AES are developing a Epilepsy Patient Information Center (EPIC) database for care of patients with epilepsy. EPIC should facilitate tracking of seizure patients in clinic and in drug studies, and it should facilitate generation of Medicare-compliant notes.
• A new AES-supported clinical trials consortium has been organized. The consortium will initiate an inaugural trial of a drug to treat infantile spasms.
• Fundraising for research and selection of research grants for funding has long been a joint activity of AES and EF. This year AES initiated a new joint program designed to educate epilepsy care professionals on issues of epilepsy and employment.
• The AES is experiencing a wonderful period of growth and vitality. Both Susan Spencer, President 2000 and Bob Fisher, the President during 1999 have set in motion new initiatives and new ideas drawn from a very comprehensive strategic plan.

M. Suzanne C. Berry
Executive Director

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