News About ILAE
Epilepsy Awareness Day November 4-5, 2015
Honoring the ILAE and the IBE for their efforts in uniting the world's epilepsy communities and the launch of
International Epilepsy Day!
Epilepsy Awareness and Education Expo, November 4: The EXPO was added to put patients and families together with epilepsy professionals, in order to get everyone as much support as possible. The EXPO features over 80 non-profit support groups, several hospital epilepsy centers, pharma companies, epilepsy devices and more! There will be physician talks as well as presentations on new technologies, seizure dog training, SUDEP and genetic testing.
Epilepsy Awareness Day, November 5: This amazing day at Disneyland was founded to unite the epilepsy community, bring epilepsy out of the shadows, and stomp out epilepsy stigma. We can inspire a nation in which 1:26 people will have epilepsy in their lives by bringing awareness and stories of wonderful people working and playing together. Disneyland will be filled with our community for a day of fun with new friends and colleagues.
World Brain Day July 22, 2015
The World Federation of Neurology, the International League Against Epilepsy (ILAE), the International Bureau for Epilepsy (IBE), and the World Health Organization (WHO) are pleased to announce that the focus for this year's World Brain Day is epilepsy.
- Most common of the chronic serious brain diseases
- Lack of awareness among public & misperceptions
- Enormous psychosocial consequences for most people who have epilepsy.
- Inadequate knowledge among physicians
- Poor availability of medications in most countries
Videos and more information about World Brain Day
Publisher Discount on Epilepsy Books for ILAE Chapter Members
ILAE Chapter members can now receive a 15% on all books on epilepsy published by John Libbey Eurotext. Use Promotional Code: EPILEPSY when ordering on the John Libbey website.
Search for books, order here
Epilepsia remains the top epilepsy journal
Epilepsia's latest impact factor is 4.571, essentially unchanged from last year. Epilepsia remains the top epilepsy journal, ranked 24 of 192 Clinical Neurology journals (up from 26 last year), with the most important and most cited papers.
Read the top 10 cited articles contributing to Epilepsia's new Impact Factor.
Access to these key articles is free for a limited time.
ILAE Secretary General Helen Cross awarded the Order of the British Empire for work with children with Epilepsy
Professor Helen Cross, The Prince of Wales's Chair of Childhood Epilepsy and Honorary Consultant in Paediatric Neurology at UCL-Institute of Child Health, Great Ormond Street Hospital for Children NHS Trust, and Young Epilepsy, was awarded the Officer of the Most Excellent Order of the British Empire (OBE) in the Queen's birthday honours. The Queen’s Birthday Honours list recognises the achievements of a wide range of extraordinary people across the UK.
Professor Cross received the OBE for services to children with epilepsy. She has published research papers on seizures and neuropsychological and behavioural outcomes in children who have undergone brain surgery for treatment of their epilepsy. Her research has also focused on improving outcomes for children with early onset epilepsy. In addition, she conducted the first randomised controlled trial of the ketogenic diet in the treatment of children with drug resistant focal epilepsy.
More about OBE Honour for Helen Cross
European Commission does not change directive on animal experimentation
In reply to the European Citizens' Initiative "Stop Vivisection", the Commission concludes as follows:
The Commission welcomes the mobilisation of citizens in support of animal welfare. The Citizens' Initiative has provided an opportunity to critically examine how the EU can reinforce its efforts in moving from animal to non-animal based research and testing.
The Commission underlines that, for the time being, animal experimentation remains important for protecting human and animal health, and for maintaining an intact environment. While working towards the ultimate goal of full replacement of animals, Directive 2010/63/EU is an indispensable tool at the EU level to protect those animals still required.
European Commission communication | ILAE position
What are minimum requirements for ketogenic diet services in resource-limited regions?
Despite the increasing use of dietary therapies for children and adults with refractory epilepsy, the availability of these treatments in developing countries with limited resources remains suboptimal. One possible contributory factor may be the costs. There is often reported a significant perceived need for a large ketogenic diet team, supplements, laboratory studies, and follow-up visits to provide this treatment. This article from the ILAE Task Force for Dietary Therapy discusses practical, cost-effective recommendations for new ketogenic diet centers in resource-limited regions of the world. (Epilepsia DOI:10.1111/epi.13039).
Abstract | Article | PDF
The 2014 ILAE Annual Report is now available. The Report outlines work and accomplishments for the period of July 2013 – June 2014 and includes reports from the ILAE Executive, Regional and Topic-Oriented Commissions as well as ILAE Chapters around the world.
ILAE Position on “Stop Vivisection Initiative”
The ILAE and IBE Executive Committees, the AES-ILAE Translational Research Task Force, and the Neurobiology Commission of the ILAE have prepared a response to the members of the European Parliament to oppose the March 3rd, 2015, European Citizens Initiative Stop Vivisection. This initiative requests the phasing out of animal experimentation in biomedical research in Europe. Discussion and voting on this initiative is expected over the next 1-2 months.
The position of the ILAE-IBE is that this initiative is deleterious for the future of biomedical research, and is summarized here. If you agree with our position, we urge you to join our efforts to disseminate and clarify our position to those who may inform the voting Members of the European Parliament so that this initiative is not voted. Read position summary.
Patrick Kwan, Leonor Cabral-Lim, Wendyl D'Souza, Satish Jain, Byung-In Lee, Weiping Liao, Shih-Hui Lim, Taisuke Otsuki, Chong-Tin Tan, Masako Wantanabe, for the CAOA Research Task Force
Epilepsia DOI: 10.1111/epi.12957. Article first published online: 30 MAR 2015.
Although there has been substantial economic development and improvement in health services in recent years in the Asia-Oceanian region, epilepsy remains generally an underrecognized and understudied condition. To help promote research in the region, the Commission on Asian and Oceanian Affairs (CAOA) of the International League Against Epilepsy (ILAE) appointed the Research Task Force (RTF). More …
From the Information Officer | From the Vice President | Traditional Healers | First Francophone Teaching Course | Building Infrastructure in Africa | Preventing Epilepsy After Injury | Preventing Death in Epilepsy | Awards | Obituary: Yukio Fukuyama | Obituary: Karen Gale | EpiNet | ILAE Journals | Upcoming Congresses
The paper archives of the ILAE have been moved to the Wellcome Trust in London, and professionally archived, and it is to be hoped that the improved accessibility will lead to historical studies and investigations which will inevitably enhance the reputation of the ILAE. The electronic index may be accessed at the Wellcome Trust.
The ILAE is now creating a procedure to collect documents from individuals around the world to help complete, enrich, and enhance the archive. Both historical and contemporary materials will be requested. Read more about ILAE archive enhancements…
Valproate in the treatment of epilepsy in women and girls
Pre-Publication Summary of Recommendations from a joint Task Force of
ILAE-Commission on European Affairs and European Academy of Neurology (EAN)
Pre-publication summary of recommendations for the use of valproate in the treatment of girls and women with epilepsy in the context of the European Medicines Agency's (EMA) recently published warnings and restrictions. This is a summary of a manuscript that was submitted earlier today to Epilepsia and is based on the work of a joint Task Force CEA-ILAE and EAN (the European Academy of Neurology). (10 March, 2015)
ILAE Leadership Development Program Scholarship – Application deadline 1 March, 2015
The ILAE is offering a Leadership Development Award to support the preparation and advancement of young physician leaders selected from ILAE chapters around the world. It affords a unique and exclusive opportunity to receive leadership development training, one-on-one guidance from a carefully selected mentor, and the opportunity to network with other rising leaders from around the globe. In 2015, its inaugural year, 15 candidates will be selected to participate in the program.
Awardees will receive:
- Admission to the 31st International Epilepsy Congress (IEC) in Istanbul, from September 5-9 2015.
- Admission to the invitation-only leadership face-to-face development training course September 5-6, 2015 and distance-based interactive webinars with faculty.
- Lunch with ILAE President and executive leaders
- Certificate of completion
Travel support may be available for some awardees. Apply early, space is limited. Deadline: 1 March, 2015. Instructions and more information.
Email newsletters can be blocked or filtered into the bulk folder or spam, especially now that email filters are focusing more strongly on “grey mail” or commercial mail. Even if mails have been received in the past, your filter may change at any time. To ensure you receive the ILAE monthly digest, please add our email sender address (ILAE_News@mail.vresp.com) to your contacts or add the domain. Instructions here or request subscription.
The 2014 CAOA Newsletter is now available, containing the annual report as well as reports on the 10th AOEC, the Indian Epilepsy Society, Japan Epilepsy Society, ASEPA, Purple Day, and Taiwan Epilepsy Society.
Letter to the EMA (European Medicines Agency) from the ILAE Commission on European Affairs (CEA), ILAE Commission on Medical Therapies, and ILAE Task Force on AED Trials and Regulatory Affairs regarding PRAC recommendations to strengthen the restrictions on the use of valproate in women and girls.
ILAE Letter | EMA PRAC Recommendation
An important way to "bring epilepsy out of the shadows" and educate the public about modern concepts that epilepsy is a disease like any other is through awareness. The International Epilepsy Day is the focus of a series of letters and commentaries collected by Epilepsia. The Executive Committees of ILAE and IBE have voted in favor of holding International Epilepsy Day on the second Monday of February. We realize that no day is ideal for every country, but we feel that holding such an international event will help promote awareness of epilepsy across the globe. Read Commentaries and letters compiled by Epilepsia.
Sam Berkovic and Ingrid Scheffer Awarded 2014 Prime Minister's Prize for Science
The genetics of epilepsy: bringing hope to families
Sam Berkovic and Ingrid Scheffer have changed the way the world thinks about epilepsy, the debilitating condition that affects about 50 million people. The two clinician-researchers from the University of Melbourne have led the way in finding a genetic basis for many epilepsies, building on their discovery of the first ever link between a specific gene and a form of epilepsy. Finding that answer has been of profound importance for families.
Owing to an unexpected illness Gary Mathern will need to step back from Epilepsia for a while. To ensure continued smooth handling of all Epilepsia matters the Executive Committee has given unanimous support to the appointment of Mike Sperling as an interim Co-Editor in Chief. Mike will be working in close partnership with Epilepsia's other Co-editor-in-Chief, Astrid Nehlig.
We are grateful to Mike for taking the helm at such short notice, and wish Gary a full recovery, expecting to see him back at the helm in due course.
A word from Gary Mathern
The Congolese League Against Epilepsy (LICOCE) held an Epilepsy Regional Teaching Courses from September 6-11 in Kinshasa. Participants came from Burundi, Cameroon, Senegal, Benin and Morocco as well as Kinshasa and the DRC. This workshop was financially supported by the ILAE through its Commission on African Affairs (CAA) and the African Regional Committee (ARC) of The International Brain Research Organization (IBRO), and was the first collaborative experience between ILAE and IBRO in the Democratic Republic of the Congo. Read report.
ILAE and IBE Presidents' Ice Bucket Challenge
ILAE President Emilio Perucca and IBE President Thanos Covanis have joined together to urge all to:
- learn more about epilepsy
- fight discrimination
- advocate for better epilepsy care
- support epilepsy research and
- celebrate the first International Epilepsy Day the second Monday in February, 2015
Epilepsy India: Newsletter of the Indian Epilepsy Association and the Indian Epilepsy Society
July – September, 2014
Contents: Definition of Epilepsy | ECON 2014 Kolkata | Bone Health and Epilepsy | Around the World | Upcoming Events | National Epilepsy Day 2013 | Tirupati Oration in Epilepsy
The ILAE Commission on Classification and Terminology is pleased to announce the release of a cutting-edge online diagnostic manual of the epilepsies. The manual makes available the latest concepts relating to seizures and the epilepsies in an easy to understand form. The principal goal is to assist clinicians who look after people with epilepsy anywhere in the world to diagnose seizure type(s), classify epilepsy, diagnose epilepsy syndromes and define the etiology.
In a study just published in the prestigious Lancet Neurology, an international group of epilepsy researchers assembled by the ILAE Genetics Commission have made an important first step in discovering that whether or not we develop epilepsy may be determined by the combination of genes that we inherit.
An international resource listing medical centers, books from 5 countries, articles, recipes, products, news, and recipes. Many of the pages are available in Spanish, and recipes from 10 countries show how easily the ketogenic diet meals can be made culturally appropriate. Compiled by the Medical Therapies' Commission Task Force on Dietary Therapies.
Education in the world of Epilepsy
Epileptic Disorders, the official journal of the ILAE primarily devoted to the educational aspects of epilepsy and related disorders, is undergoing a number of changes. Under the leadership of Alexis Arzimanoglou, the Editor-in-Chief, the journal remains committed to its initial principle: the sharing of clinical practices and research perspectives within the Epilepsy Community. It will continue to provide original manuscripts and interesting video sequences, as well as new features.
Read complete description in this Editorial.
It is with profound sadness that the League learned last week of the death of its former President (1989-1993) and 2001 winner of the League's Lifetime Achievement Award, Harry Meinardi. Harry was the retired Director of Epileptology of the Stichting Epilepsie Instellingen Nederland in Heemstede, the Netherlands and Professor of Epileptology at Radboud University in Nijmegen. He had also served as President of the League's sister organization the International Bureau for Epilepsy.
Harry had an international orientation from the outset. He was born in Nice, France , spent much of his childhood in the Dutch East Indies (Indonesia), received his medical education in the Netherlands and spent many years pursuing basic research at the Rockefeller University in New York. He was one of those unique individuals who moved easily between the many psychosocial and medical issues of epilepsy and the study of the basic mechanisms of epilepsy in the laboratory. His leadership skills benefitted the ILAE and the IBE as well as the many junior colleagues whom he mentored.
The international epilepsy community has lost a major figure, but his legacy remains in the many people he helped bring to the epilepsy cause.
As a service to members, we have begun an online bulletin board where we will post requests for – and offers of – used EEG equipment. If your institution is upgrading, and could sell or donate used equipment, please email firstname.lastname@example.org. View requests and offers at the bulletin board, located under Resources on this website.
Samuel F. Berkovic recognized as a Companion of the Order of Australia
The League was pleased to learn that one of our members, Samuel F. Berkovic, was one of seven Australians recognized as a Companion of the Order of Australia by Queen Elizabeth on this year’s Australia Day Honours List (January 26, 2014). It is one of the highest national awards in the country and is reserved for “eminent achievement and merit of the highest degree in service to Australia or to humanity at large.”
Sam received the honor “for eminent service to biomedical research in the field of epilepsy genetics as a leading academic and clinician, to the study of neurology on a national and international level, and as an ambassador for Australian medical science education.” Sam and his colleagues have been leaders for many years in making major contributions to our understanding of the genetic mechanisms underlying some forms of epilepsy.
Sam is a very active contributor to ILAE activities, being currently a member and past chair of the Commission on Genetics.
Please join us in congratulating Sam on this well deserved recognition and in wishing him future success in his efforts to find the causes of epilepsy.
More about the awards
ILAE Genetics Commission blog – 5 questions that you need to ask
Improving genetic literacy is one of the core missions of the ILAE Genetics Commission. As part of a comprehensive online strategy, the Genetics Commission will maintain a weblog (“blog”) on recent topics in this field.
Read the blog to discover what the Commission does, and the 5 main questions you should ask them.
Newsletter from Asia-Oceania Region
The 2013 Commission newsletter includes:
- Highlights of the 30th IEC
- Meeting Minutes and Congress summaries
- Prize winners
- Reports from Chapters: Japan, Malaysia, Myanmar
- Invitations to scholarships and grants
... and more!
New Chapter of the ILAE
The Epilepsy Special Interest Group of Myanmar has been provisionally accepted as a chapter of the ILAE. Final acceptance will be voted at the 31st International Epilepsy Congress in Istanbul in 2015.
Commentary on the 1st International Summer School for Neuropathology and Epilepsy Surgery (INES)
Held in Erlangen, Germany, September 16-20, 2013
August 2013 Epilepsia Gray Matters
• Stereo-electroencephalography safety and effectiveness
• The curse of in silico transformation from Palmini's into the ILAE classification system of focal cortical dysplasia
• Epilepsy informatics and an ontology-driven infrastructure for large database research and patient care in epilepsy
• Informatics – a computational approach to the complexity of the epilepsies
Books at a discount
Wisepress Online Medical Bookshop now offers ILAE members a 15% discount on medical titles including ebooks from all the major publishing companies.
ILAE is pleased to announce the provisional addition of five new chapters:
- Association Against Epilepsy in Bosnia and Herzegovina
- Caribbean League Against Epilepsy
- Congolese League Against Epilepsy
- Ivorian League Against Epilepsy
- Rwandan League Against Epilepsy
Final integration of the chapters to ILAE is awaiting confirmation at the General Assembly that will take place during the International Epilepsy Congress in Montreal on June 26, 2013.
May Epilepsia Gray Matters
Carbamazepine coadministration with an oral contraceptive and announcements
Epilepsy News Africa
This issue focuses on the stigma of epilepsy, particularly for women. Also, read reports from conferences and countries, and challenges in epilepsy care, past, present and future.
April Epilepsia Gray Matters
- Letters: Early onset absence epilepsy: What changes using Panayiotopoulos’s criteria?
- In search of the Rosetta Stone
- The way out of Babel
Strategic Plan on Epilepsy
Summary of recent issues from the Quito Epilepsy Congress, November, 2012.
English • Spanish
“I was taken out of the shadows”
Statement from Silvia Marca Gonzales, child neurologist from Bolivia, regarding her experience at the Latin American Summer School on Epilepsy - LASSE- and her one year ALADE/ILAE sponsored fellowship in epilepsy in Santiago de Chile.
North American Commission Symposium at 4th Biennial North American Epilepsy Congress
Epilepsy Classification: Hot Controversies in 2012
Classification of the epilepsies is a dynamic concept that continues to undergo re-evaluation, especially in light of advances in structural and functional neuro-imaging, genetics and neuro-immunology. This symposium, sponsored by the International League Against Epilepsy, will focus on the newly updated organization of the epilepsies, exploring the emerging concept of diagnostic specificity and how this relates to clinical practice. Controversies that have arisen regarding the specific aspects of classification, namely structural, genetic and immune, will be presented.
Joint ILAE/AES workshop to optimize preclinical epilepsy therapy discovery.
London UK, September 28-29, 2012
A joint International League Against Epilepsy (ILAE)- American Epilepsy Society (AES) workshop to optimize and accelerate preclinical epilepsy therapy discovery took place at Customs House Hotel in London, U.K., on September 28-29, 2012. The purpose of this workshop was to identify optimal methodology and strategies for the discovery, validation and translation of new therapies into the clinics as well as recommend infrastructure developments that may enhance and de-risk therapy discovery for seizures, epilepsies, and their comorbidities.
Specific working groups were assigned to address the clinical gaps and opportunities (chair: Jacqueline French), general issues (chair: Aristea Galanopoulou), issues related to antiseizure treatments (chair: Karen Wilcox), antiepileptogenic treatments (chair: Asla Pitkanen), anti-comorbidity treatments (chair: Amy Brooks-Kayal), biomarkers (chair: Pete Engel), or de-risking the transition to clinical trials (chairs: Michele Simonato, Terence O’Brien).
This workshop was organized by Drs French, Galanopoulou, O'Brien, and Simonato, was attended by 49 international investigators and was made possible through the generous co-sponsorship by the ILAE, AES, CURE, Epilepsy Therapy Project, and Autism Speaks.
Elections of the ILAE Executive Committee, 2013-2017 term
Follow and Like ILAE to receive alerts to the latest ILAE news.