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Call for Wikipedia Epilepsy Editor

The International League Against Epilepsy (ILAE) invites applicants and nominations for the position of Editor-in-Chief of its new Wikipedia Epilepsy initiative. Wikipedia is the most commonly accessed source of health information by professionals and the lay public worldwide. This presents the ILAE with a unique opportunity to convey through Wikipedia the most authoritative and up-to-date information on epilepsy, with the widest possible penetration and range, and in many languages. It will also build an awareness of the ILAE and further ILAE's mission to ensure that health professionals, patients and their care providers, governments, and the public world-wide have the educational and research resources that are essential in understanding, diagnosing and treating persons with epilepsy. Qualifications, responsibilities and application process.


New Epileptologist Competencies Survey

The ILAE is developing an educational curriculum for Epileptologists. These are highly trained clinicians who focus their clinical practice on epilepsy, and are expected to manage patients with complex or difficult to control epilepsy. The curriculum will be based on a set of key abilities or competencies that epileptologists should have to effectively meet the needs of the people with epilepsy they serve. We need you to help us identify the competencies that are important for training Epileptologists and that should be included in an educational curriculum. This is an anonymous survey. Complete survey: www.surveymonkey.com/r/epileptologistcompetencies


Apply now for ILAE Leadership Development Program Scholarship – Application deadline 3 April 2017

Sheryl Haut
Sheryl Haut

Jaideep Kapur
Jaideep Kapur

 

The ILAE is again offering a Leadership Development Award to support the preparation and advancement of young physician leaders selected from ILAE chapters around the world. It affords a unique and exclusive opportunity to receive leadership development training and occasions to network with other rising leaders from around the globe, under the direction of program coordinators Sheryl Haut and Jaideep Kapur.

20 Awardees will receive:

  1. Admission to the 32nd International Epilepsy Congress (IEC) in Barcelona, from September 2-6 2017.
  2. Admission to the invitation-only leadership face-to-face development training course September 2-3, 2017
  3. Lunch with ILAE President and executive leaders
  4. Brief afternoon social with leadership alumni and certificate of completion

Limited travel and lodging support may be available for some awardees. Interested candidates are encouraged to apply early: space is limited and admissions will be considered on a rolling basis. Deadline: 3 April 2017.

Application and instructions | 2015 Program winners


EpilepsyDiagnosis.org now includes structural etiologies of the epilepsies

The structural etiology section of the EpilepsyDiagnosis.org diagnostic manual has been expanded to include details of major structural brain abnormalities that cause epilepsy, including the clinical context in which they occur, seizure types seen, EEG features, imaging features, genetic contributions, and differential diagnosis, including:

  • malformations of cortical development: focal cortical dysplasia, tuberous sclerosis, lissencephaly, subcortical band heterotopia, grey matter heterotopia, polymicrogyria, hemimegalencephaly, schizencephaly and hypothalamic hamartoma.
  • vascular malformations: cerebral angioma, Sturge-Weber syndrome and arteriovenous malformation.
  • hippocampal sclerosis
  • hypoxic-ischemic: stroke and hypoxic ischemic brain injury
  • traumatic brain injury
  • tumors: dysembryoplastic neuroepithelial tumors and ganglioglioma
  • porencephalic cysts


John Pellock (1943-2016)

Jack Pellock

It is with the deepest regret and sorrow that the ILAE learned that Dr. John (Jack) Pellock passed away May 6, 2016. He never hid the fact that he had cancer and faced his illness with his typical optimism and enthusiasm for life. Internationally he was best known for his research in pediatric epilepsy and epilepsy drug development. Jack participated in many federal and industry supported research endeavors, and he published over 200 journal articles and 70 book chapters.

 

 


Please Respond: Research Priorities Survey

Research Priorities Survey

The Global Research Priorities and Advocacy Task Force has compiled a list of research priorities on which they now seek further opinion. The ILAE recognizes that priorities may differ dependent on resource and region of the world and there may be overlap among different communities.

Joint collaborative initiatives in other specialties have resulted in successful funding. Our community is poised to take advantage of the successful ILAE and IBE lobbying activities implemented over the last decade to seek funding for ambitious research programs at an international scale, using a well-delineated and consensual assessment of research priorities for improving healthcare in Epilepsy.

Take survey.


International Epilepsy Day — Monday 8 February

An international day to help raise awareness and educate the public on the facts about epilepsy, and the urgent need for improved treatment and care and greater investment in research. www.epilepsy.org.

Around the world, IBE and ILAE chapters, epilepsy centers, support groups and others are finalizing plans. In the European Parliament in Strasbourg 800 Members of the European Parliament (MEPs) will be able to enjoy the special Yes I can! photo exhibition. See details about activities on the International Epilepsy Day website (www.epilepsy.org)



ILAE Secretary General Helen Cross awarded the Order of the British Empire for work with children with Epilepsy

Helen Cross receives OBE from QEII

Professor Helen Cross, The Prince of Wales's Chair of Childhood Epilepsy and Honorary Consultant in Paediatric Neurology at UCL-Institute of Child Health, Great Ormond Street Hospital for Children NHS Trust, and Young Epilepsy, was awarded the Officer of the Most Excellent Order of the British Empire (OBE) in the Queen's birthday honours. The Queen’s Birthday Honours list recognises the achievements of a wide range of extraordinary people across the UK.

Professor Cross received the OBE for services to children with epilepsy. She has published research papers on seizures and neuropsychological and behavioural outcomes in children who have undergone brain surgery for treatment of their epilepsy. Her research has also focused on improving outcomes for children with early onset epilepsy. In addition, she conducted the first randomised controlled trial of the ketogenic diet in the treatment of children with drug resistant focal epilepsy.

News links about OBE Honour for Helen Cross


Farewell: Christoph Pachlatko (1956 — 2015)

Dr. Christoph Pachlatko, who was a member of the Board of the Swiss League Against Epilepsy for over 25 years, passed away completely unexpectedly on 24th October 2015. He was General Director of the Swiss Epilepsy Clinic in Zurich since 1987 and on the Board of the Swiss League Against Epilepsy (SLgE) since 1988. He played a crucial role in the reorganisation of the SLgE, which in July 2002 led to the foundation of Epi-Suisse, the primarily socially oriented Swiss Epilepsy Association. Christoph Pachlatko was was also a pre-eminent representative of the interests of the SLgE and Epi-Suisse on the international level: He was elected to various committees of the ILAE, such as those for Epilepsy Care, The Burden of Epilepsy, Economic Aspects of Epilepsy and Healthcare Policy. In 1997, in recognition of his multi-faceted work, he received the award Ambassador for Epilepsy, which is conferred together by the ILAE and the International Bureau for Epilepsy for outstanding activities in the field of epilepsy.


New Epigraph Newsletter from ILAE

Epigraph

From the President | Bhutan Epilepsy Project | Arranged Marriage Roundtable | Marriage and Epilepsy | ILAE Leadership Development Program | ALADE Fellowships | Classifying Seizures in the Very Young | VIREPA | Obituary: Jean Aicardi | Obituary: Hanneke de Boer | EpiNet | ILAE Journals | Upcoming Congresses

 

 


New ILAE Classification of Status Epilepticus

The Task Force on Classification of Status Epilepticus has published its report on the definition and classification in the October edition of Epilepsia. This report will significantly change our concept of the condition and the approach to treatment. First and foremost it changes the concept of status epilepticus from a single entity into the more important and realistic view that the condition is a complex combination of cause and consequence that may require a more tailored approach. As new studies on status epilepticus are developed this classification will become a means of stratifying outcome risk and lead to a more useful evaluation of treatments which ultimately should be aimed to improving outcomes. The classification is available online and open access.

Read new classification in Epilepsia


Epilepsy Awareness Day November 4-5, 2015

Epilepsy Awareness Day 2015 Disneyland

Honoring the ILAE and the IBE for their efforts in uniting the world's epilepsy communities and the launch of International Epilepsy Day!

Epilepsy Awareness and Education Expo, November 4: The EXPO was added to put patients and families together with epilepsy professionals, in order to get everyone as much support as possible. The EXPO features over 80 non-profit support groups, several hospital epilepsy centers, pharma companies, epilepsy devices and more! There will be physician talks as well as presentations on new technologies, seizure dog training, SUDEP and genetic testing.

Epilepsy Awareness Day, November 5: This amazing day at Disneyland was founded to unite the epilepsy community, bring epilepsy out of the shadows, and stomp out epilepsy stigma. We can inspire a nation in which 1:26 people will have epilepsy in their lives by bringing awareness and stories of wonderful people working and playing together. Disneyland will be filled with our community for a day of fun with new friends and colleagues.

www.epilepsyawarenessday.org


World Brain Day July 22, 2015

World Brain Day July 22 2015

The World Federation of Neurology, the International League Against Epilepsy (ILAE), the International Bureau for Epilepsy (IBE), and the World Health Organization (WHO) are pleased to announce that the focus for this year's World Brain Day is epilepsy.

  • Most common of the chronic serious brain diseases
  • Lack of awareness among public & misperceptions
  • Enormous psychosocial consequences for most people who have epilepsy.
  • Inadequate knowledge among physicians
  • Poor availability of medications in most countries

Videos and more information about World Brain Day


Publisher Discount on Epilepsy Books for ILAE Chapter Members

John Libbey Eurotext offers 15% discount

ILAE Chapter members can now receive a 15% on all books on epilepsy published by John Libbey Eurotext. Use Promotional Code: EPILEPSY when ordering on the John Libbey website.

Search for books, order here


Epilepsia remains the top epilepsy journal

Epilepsia

Epilepsia's latest impact factor is 4.571, essentially unchanged from last year. Epilepsia remains the top epilepsy journal, ranked 24 of 192 Clinical Neurology journals (up from 26 last year), with the most important and most cited papers.

Read the top 10 cited articles contributing to Epilepsia's new Impact Factor.
Access to these key articles is free for a limited time.

 

 


ILAE Secretary General Helen Cross awarded the Order of the British Empire for work with children with Epilepsy

Helen Cross

Professor Helen Cross, The Prince of Wales's Chair of Childhood Epilepsy and Honorary Consultant in Paediatric Neurology at UCL-Institute of Child Health, Great Ormond Street Hospital for Children NHS Trust, and Young Epilepsy, was awarded the Officer of the Most Excellent Order of the British Empire (OBE) in the Queen's birthday honours. The Queen’s Birthday Honours list recognises the achievements of a wide range of extraordinary people across the UK.

Professor Cross received the OBE for services to children with epilepsy. She has published research papers on seizures and neuropsychological and behavioural outcomes in children who have undergone brain surgery for treatment of their epilepsy. Her research has also focused on improving outcomes for children with early onset epilepsy. In addition, she conducted the first randomised controlled trial of the ketogenic diet in the treatment of children with drug resistant focal epilepsy.

More about OBE Honour for Helen Cross


News About ILAE Archive

Read older news about ILAE here.

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