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Commission on Epidemiology of Epilepsy

Prof. W. Allen Hauser, MD
Columbia University
College of Physicians and Surgeons
G.H. Sergievsky Center – PH 19, Room 309
630 West 168th Street
New York, NY 10032, USA
Phone: +1 212 305 2447
Fax: +1 212 305 2518
E-mail:

Goals:
To advice the ILAE executive on issues related to medical, economic and psycho-social aspects of the Burden of Epilepsy

List of Subcommissions
- Subcommission on outcome measures and personal aspects of the burden of epilepsy
- Subcommission on epidemiology
- Subcommission on projects related to the global campaign
- Subcommission on the economic aspects of epilepsy

Meetings held by the Commission:
- Commission meeting in Prague September 10, 1999
- Closed one-day workshop on the economic aspects of epilepsy in Prague, September 11, 1999
- Parallel session on Economic aspects of epilepsy at the 23rd International Epilepsy Congress in Prague September 13, 1999
- Commission meeting in Orlando December 5, 1999
- Meeting of subcommission on economic aspects in Orlando December 5, 1999
- Meeting of subcommission on epidemiology in Orlando December 7, 1999

Contacts and interactions with other commissions:
The subcommission on Economic aspects has established collaboration with the Commission on Neurosurgery.
The subcommission for the Global Campaign is collaborating with the Commission for the Developing World.
The subcommissions for the Global Campaign, on the Economic Aspects of Epilepsy and on Outcome measures are collaborating to develop relevant outcome measures for the demonstration projects in developing countries.
The commission has also established contacts with the Commission on Search for Epilepsy Genes and the Commission on Diagnostic Strategies on issues related to the teratogenic effects of antiepileptic drugs.

Summary of activities
Full commission meetings have taken place at the International Epilepsy Congress in Prague in September and in conjunction with the American Epilepsy Meeting in Orlando. A closed one-day workshop and a parallel session on the Economic Aspects of the Burden of Epilepsy were organised at the 23rd IEC by the Subcommission on Economic Aspects. This has been followed up with a subcommission meeting in Orlando to discuss further activities and plans for the remaining term.

The Subcommission on Epidemiology organised a meeting in Orlando to bring people together who share an interest in studies on mortality in people with epilepsy, and who can contribute with further data on this topic. Plans were laid out for a workshop on Mortality in Epilepsy.

The chairman of the Subcommission on Outcome Measures and Personal Aspects of the Burden of epilepsy has been responsible for a systematic review of outcome measures used in clinical trials.

The chairman of the Subcommission on Projects Related to the Global Campaign has been very active in the work with the demonstration projects in developing countries. At this stage focus has been on the development of a teaching programme for local doctors, nurses and other health care workers and on methods for assessment of the effects of the educational programme. The project is planned to be implemented in three countries in Latin America, in China and also in some African countries.

Plans for the coming year:
A workshop will be organised by the Subcommission on Outcome Measures in Liverpool on April 7-8, 2000 . The main objective of this meeting is to discuss outcome measures for the demonstration projects of the Global campaign.

The Subcommission on Epidemiology will conduct a workshop on Mortality in Brussels on May 19 to 20. The objective is to address the questions of mortality in people with epilepsy and to facilitate future studies on the topic. The workshop is expected to result in a report to be published in Epilepsia and also to form a basis for a session on mortality at the 24th International Epilepsy Congress in Buenos Aires 2001.

The Subcommission on Economic Aspects of the Burden of Epilepsy is working on a series of papers addressing the economic aspects of epilepsy at different levels. In addition, the subcommission plans to publish a report in 2001 including an economic analysis in epilepsy, an identification of key methodological issues, and recommendation statements on these issues. Presentations are also planned in the form of a session at the 24th International Epilepsy Congress.

A two-day commission meeting is planned on October 6 to 7, 2000 in Florence immediately before the 4th European Congress on Epileptology. The objective of this meeting is to bring representatives from the subcommissions together for progress reports and for co-ordination of the reports from the commission.


Annual Report 2000 Table of Contents

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