Commission on North American Affairs
Chair and Contact Information
Dr. William H. Theodore
Annual Report 2002
Date: November 22 2002
Amza Ali, Jamaica
To advise the ILAE executive on ways to support improvements in the status and treatment of people with epilepsy in North America. Two populations in particular are emphasized: Residents of developing nations within the region, and members of underserved groups within the region's developed economies. In addition we hope to facilitate participation of the North American Region in the Global Campaign.
Summary of Activities for 2001-2002
The full commission met in December 2001 in Philadelphia during the American Epilepsy Soceity Meeting.
Interaction with Other Commissions
We are interacting with the Latin American Commission, particularly it's Mexican representatives, who are geographically and economically inhabitants of North America.
NINDS Advisory Panel on Health Disparities in Epilepsy
This panel met in Bethesda Maryland on November 13 2002. Funding was provided by the NINDS Office of Health Disparities. AES, ILAE, the Global Campaign, and EF / IBE were represented. The Panel addressed epidemiological, social and economic issues in epilepsy, as well as access to care, including the special problems of women, underserved minorities, inner city populations, and Native Americans. We hope to facilitate issuing RFPs based on the panel's report. Based on the discussions, several potential projects that could become part of the Global Campaign emerged. One would involve a demonstration project on the Navajo Indian Reservation in the 'Four Corners' region. A US Public Health Service Neurologist, Dr Karen Parko, provides neurologic care for the approximately 250, 000 registered Navaho. She recently received some funding from the US Centers for Disease Control to initiate an epidemiological survey, and is working to get her project approved by the Tribal IRB. There is also the possibility of an urban US project, although this is still in embryonic stages.
Fogarty International Center Stigma Conference
Epilepsy was one of the main topics of this conference, and a Request for Proposals was issued inviting submission of grant applications. Several epilepsy studies were submitted. Funding has not yet been announced.
Global Campaign activities
One of the Commission members (Dr Theodore) has been serving as an advisor to the World Health Organization South East Asian Region, in the development of a project to treat generalized tonic-clonic seizures in the South East Asian Region. Meetings were held in Bangkok in November 2001, and Yangon in September 2002. A training manual, patient screening questionnaire, and treatment protocol using phenobarbital have been developed for the use of rural health care workers in the region.
Satellite on Health Disparities and Epilepsy at AES
We are making efforts to arrange a satellite symposium at AES to be devoted to the social and economic aspects of epilepsy, the treatment gap and stigma.
Plans for 2002-2003
We plan to continue working on the projects outlined above. We will work with the NINDS Health Disparities Office to develop the potential epilepsy projects, and to write Requests for Proposals for epilepsy health disparities and stigma research. In addition, we will try to obtain support for a course on health disparities and epilepsy to be held at the American Epilepsy Society meeting.