Assist Departments of Health in the Development
of a National Epilepsy Strategy
Country Resources for Epilepsy Questionnaire
These questionnaires were sent to all 196 WHO member states
and all IBE or ILAE chapters with the aim to map the needs
and resources for epilepsy world-wide.
In addition they have been translated into French and Spanish
for use in the French speaking countries of Africa and for
Latin America. The questionnaires are now being collected
in all six WHO Regions.
The collection of completed questionnaires is ongoing with
the assistance of some of the WHO Regional Advisors on Mental
Health as well as some members of IBE and ILAE.
To date questionnaires have been returned from over 100 countries.
China : In China, 55,616 people were screened in
five provinces. A paper based on the outcomes of the first
phase was published in the journal Neurology in
May 2003. The outcomes of the epidemiological phase are illuminating.
Previously the lifetime prevalence of epilepsy was thought
to be approximately 4 in 1,000. From such figures it was also
estimated that there would be around 5 million people with
epilepsy in the country. Now the estimate is found to be 7
in 1,000. Therefore the estimated number of people with epilepsy
in China is almost 9 million.
There is a possibility to extend the project nation-wide;
fundraising efforts are being made through WHO channels.
Zimbabwe: The epidemiological survey has been completed,
and the next phase is about to begin.
Senegal: The Senegalese Project is completed and
the results are being analysed.
Argentina: The protocol for the Project has been
finalised. An updated budget and a plan for fundraising are
Brazil: A Meeting of Principal Investigators was
held concerning the initiation and implementation of a Demonstration
Project in Brazil.
Pakistan : Through a local initiative a Comprehensive
Epilepsy Control Programme (CECP) was launched in Karachi
in March 2001 and is now extending services all over Pakistan.
Technical Consultative Meetings
Technical consultative meetings were organised by the WHO
Regional Advisors for Mental Health in collaboration with
the Global Campaign Secretariat with the aim to:
- review the
present state of epilepsy in the regions;
- discuss regional
reports on epilepsy;
- review the
implementation of the GCAE in the region, including the
progress of Demonstration Projects;
- develop a
framework of action for countries.
took place in Togo (March 2002) and Zimbabwe (4-5 June 2001
and 22-24 October 2002) in AFRO, in Thailand (19-22 November
2001) and Myanmar (23-25 September 2002) in SEARO, in the
Philippines (14-15 November 2001) in WPRO and in Argentina
(6-7 July 2001) and Brazil (08-10 August 2002 and 13-14 June
2003) in AMRO/PAHO.