| Commission
on Healthcare Policy
Date: September 25, 2003
Report By: Charles E. Begley, Ph.D., Chair
Commission Members
Gus Baker, England
Ettore Beghi , Italy
Charles Begley, USA
Michael Halpern, USA
John Langfitt, USA
Pierre Levy, France
Christoph Pathlatko , Switzerland
Patricia Shafer, USA
Samuel Wiebe, Canada
James Butler, South Africa
Mission
To develop a template for a common reporting system that could
be used to describe and evaluate epilepsy-related healthcare systems
and policies across countries, and serve as a basis for developing
a global health policy.
Goals
- Determine what is
known about the need, access, quality, cost, and financing of
epilepsy-related healthcare services and systems in several countries,
the major sources of knowledge, and what is needed to improve
that knowledge.
- Develop a template
for gathering and analyzing information to assess the performance
of healthcare services and systems for people living with epilepsy
in different countries.
- Demonstrate the
application of the template in the collection and analysis of
data from several countries.
Summary of Activities
for 2003
The Commission met via conference calls
in February, April, and July 2002 to refine objectives of country
studies and hear progress reports.
Individual members are to conduct studies of their countries addressing
the following: 1) What is known about epilepsy-related healthcare
systems/policies in developing and developed countries? 2) What
are the major sources of knowledge? 3) What is not known? 4) What
is needed to improve knowledge of care systems/policies? Assess
existing country reports of ILAE chapters and other data sources.
Assess healthcare systems/policies with respect to healthcare access,
quality, cost, and financing of care. Update plans and review activities
during telephone meeting in February. Report findings at a workshop
and scientific session in Lisbon.
Plans for 03-05
03-04 Design and apply a template for comparative
analyses of healthcare systems and policies affecting people living
with epilepsy in different countries. Refine individual country
studies following the comparative template. Report findings at a
workshop during the European Congress in Venice.
04-05 Prepare papers and reports for a workshop and scientific
session in France on a framework for comparative analyses of healthcare
systems and policies in individual country studies, and consider
implications for global policy. Develop Epilepsia supplement and
Commission report.
Interaction with ILAE Committees
and Commissions
Work with other ILAE committees
and individuals who are working on methods for assessing healthcare
services and systems. Advise the ILAE on a common reporting system
for comparative analyses of healthcare systems and policies across
countries.
Interaction with ILAE Chapters
Survey and review country reports on existing healthcare systems
and policies. Responses can provide opportunities for cooperation
in assessing the nature of these reports, how they differ, and how
they can be improved.
Abstract for Scientific Session at International Congress
in Lisbon
Title: ILAE Commission on Healthcare Policy:
How to Reduce the Burden of Epilepsy? An International Comparison
on Quality, Cost, and Access to Epilepsy Care
Preliminary Program:
Overview of Purpose and Current
Status: Christoph Pachlatko
USA : John Langfitt
UK : Gus Baker
France : Pierre Levy
Italy : Ettore Beghi
Summary: Charles Begley
The purpose of this session
is to summarize the results of country studies of healthcare services/systems/polices
that affect people with epilepsy, and determine what can be compared.
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