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International Public Policy Activities

The International League Against Epilepsy (ILAE) is the world's preeminent association of physicians and other health professionals working towards a world where no persons' life is limited by Epilepsy.


World Health Organization (WHO) and Epilepsy

The Executive Board of the World Health Organization has unanimously approved a strong resolution in support of improving epilepsy care and research.

The resolution – Global burden of epilepsy and the need for coordinated action at the country level to address its health, social and public knowledge implications – was formally sponsored by the People's Republic of China, the Russian Federation, the Maldives, Argentina, the Islamic Republic of Iran, Japan and Panama.

Next Step

The resolution will be presented at the WHO General Assembly in May 2015 for final approval. Once approved it will become a formal policy of the WHO so that the fight against epilepsy becomes a truly global effort.

Please help this resolution succeed: Encourage your governments to support and co-sponsor the resolution at the WHO Assembly in May.

 

World Health Organization - WHO

WHO programme on reducing the epilepsy treatment gap
WHO and Epilepsy

WHO video Epilepsy: Treat it, Defeat it


Use of valproate in women and girls

Letter to the EMA (European Medicines Agency) from the ILAE Commission on European Affairs (CEA), ILAE Commission on Medical Therapies, and ILAE Task Force on AED Trials and Regulatory Affairs regarding PRAC recommendations to strengthen the restrictions on the use of valproate in women and girls.
ILAE Letter | EMA PRAC Recommendation


Epilepsy Research Priorities in Europe

European Forum on Epilepsy Research 2013

The European Forum on Epilepsy Research (ERF2013) took place in Dublin from May 26-29, 2013. Its objective was to provide a platform on how to improve the lives of persons with epilepsy in Europe by influencing the future political agenda of the EU.

The ERF 2013 defined objectives and milestones for the epilepsy community 1) how to strengthen epilepsy research, 2) how to reduce the treatment gap, and 3) how to reduce the burden and stigma of epilepsy.

Read ERF 2013 report


Governments in the Americas Will Create Epilepsy Care Programs

(Estados de las Américas crearán programas nacionales para atender la epilepsia)

Strategic Plan Update

  PAHO reports 2013

2013 Report on Epilepsy in Latin America and the Caribbean

 

November, 2012 (Quito Epilepsy Congress):

 

May, 2012

From Carlos Acevedo, Secretary General, IBE

La estrategia y plan de acción sobre Epilepsia
Spanish  Vea en Español

Announcement - Washington, D.C., 29 September 2011

The countries of the Americas, with support from the Pan American Health Organization/World Health Organization (PAHO/WHO), will work together to create national programs for the care and treatment of epilepsy, a neurological disorder that affects some 5 million people in the Americas.

Full release - View in English  English
Full release - Spanish  Spanish


European Declaration on Epilepsy

Update - May, 2012

From Emilio Perucca, Co-Chair, ILAE-IBE Joint Task Force for Epilepsy Advocacy in Europe

Parlamento Europeo la Dichiarazione sull'Epilessia
Italian version  Osservare nell'italiano

European Declaration on Epilepsy PASSED in European Parliament (September 15, 2011)

A Written Declaration on Epilepsy was passed in the European Parliament on 15th September 2011. Submitted by the European Advocates for Epilepsy Working Group in collaboration with Epilepsy Advocacy Europe – a joint task force of the International League Against Epilepsy and the International Bureau for Epilepsy, approval of the declaration marks a significant step in the efforts of both groups to increase the quality of life of people with epilepsy. Read complete news release

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