The International League Against Epilepsy (“ILAE”) wants
you to know how we address privacy issues on the ILAE web site (the “Site”).
how your personal information will be treated by ILAE. ILAE reserves the
in order to see changes. Your use of the Site constitutes your acceptance
Collection of Personal Information from Site Users
a) ILAE may collect and/or track: (1) the home server domain names,
e-mail addresses, type of computer, and type of Web browser of visitors
to the Site; (2) the e-mail addresses of visitors that communicate with
ILAE or the Site via e-mail; (3) information knowingly provided by the
visitor in online order forms, registration forms and surveys, (including
but not limited to name, address, e-mail and other personal profile
data); and (4) aggregate and user-specific information regarding page
b) ILAE may place Internet “cookies” on visitors’ hard drives. Internet
cookies save data about individual visitors, such as the visitor’s name,
password, user-name, screen preferences, the pages of a site viewed
by the visitor, and the advertisements viewed or clicked by the visitor.
When the visitor revisits the Site, ILAE may recognize the visitor by
the Internet cookie and customize the visitor’s experience accordingly.
Visitors may decline Internet cookies, if any, by using the appropriate
features of their Web client software, if available; however, this may
impair certain features of the Site
c) When a visitor performs a search within the Site, ILAE may record
information identifying the visitor or linking the visitor to the search
performed. ILAE may also record limited information associated with
every search request made by the visitor and use that information to,
among other things, solve technical problems with the service and to
calculate overall usage statistics.
Use of Personal Data Collected
ILAE may use personally identifiable information in a number
of ways, such as:
a) To communicate with you about your membership account, or to communicate
information about the Site.
b) To build higher quality, more useful services, such as by analyzing
usage trends, and by measuring demographics and interests regarding
specific areas of the Site.
c) To provide you with prompt and effective customer service.
d) To support the operation of the Site (such as account maintenance
and record keeping), troubleshoot problems, resolve disputes, and to
enforce our Terms and Conditions.
e) To inform you about goods and services related to ILAE and developments
in epilepsy research. You will have the option of opting out of further
communications of this type by sending an email to Webmaster@ilae-epilepsy.org
Disclosure of Personal Data Collected
ILAE may disclose personally identifiable information about you to Third
Parties as follows:
a) With your consent.
b) To ILAE’s agents and advisors (such as our accountants or attorneys).
We only disclose the personal information necessary for them to provide
their services to you or to us, and only under strict confidentiality
c) As ILAE believes necessary to: (a) comply with law (including court
and government orders, and civil subpoenas); (b) enforce or apply ILAE’s
Terms and Conditions and other agreements; or (c) protect the rights,
property, or safety of ILAE, our users, or others.
d) If you partake (or we reasonably suspect that you are partaking)
in any illegal or potentially illegal activity. We may disclose personal
information even without a subpoena, warrant, or other court order,
to the extent we feel is necessary to inform and cooperate with law
enforcement agencies or other appropriate authorities.
e) In aggregated form, i.e., information about multiple users collectively
without identifying any individual user, such as the total number of
visitors to a particular section in a given week.
Collection of Personal Data from Children
To the extent that ILAE is able to determine the age of users by their
submissions to, or communications with the Site, ILAE will not knowingly
(a) collect or post information from individuals under eighteen (18)
years of age (“Children” or “Child”) without their parent’s or guardian’s
consent, or (b) provide any personally identifying information collected
from Children, regardless of its source, to any third party for any
For electronic commerce transactions conducted through the Site, ILAE
has implemented certain security features to prevent the unauthorized
release of or access to personal financial information. In particular,
all financial transactions are conducted through a secure server. The
secure server encrypts all financial information a visitor inputs before
it is sent to ILAE.
Party Web Sites
The Site may contain links to other Internet web sites. Unless we explicitly
state otherwise, we have no control over these third party sites and
you supply (or that we collect) in connection with use of the Site.
You should review third party privacy policies specific to the third
party web sites to which this Site provides links.
to and Ability to Correct Personal Data
Upon request via postal mail, e-mail, or telephone (during regular business
hours), ILAE will provide to visitors a summary of any personally identifiable
information retained by ILAE regarding the visitor. Visitors may modify,
correct, change or update personally identifiable information that ILAE
has collected through the Site or may cause their personal record to
be removed from ILAE’s database by contacting ILAE via postal mail,
e-mail, or the telephone number indicated below.
familiar with our current policy.
like to review, change, and/or remove your personal information, you
may contact us at: