Epilepsy News Around the World
News articles of interest will be linked here for a period of time. Submit news articles to Deb Flower.
Dr. Ingrid Scheffer – Laureate 2012 for Asia-Pacific for the L’Oréal-UNESCO Women In Science Award
Ingrid Scheffer, Professor of Medicine and Pediatrics and Chair of Pediatric Neurology Research at the University of Melbourne, is one of the five recipients of the 2012 L’Oréal-UNESCO Women in Science Awards. The award, which includes a $100,000 prize will be formally presented at UNESCO Headquarters in Paris in March, 2012. Read more
Governments in the Americas Will Create Epilepsy Care Programs
(Estados de las Américas crearán programas nacionales para atender la epilepsia)
Washington, D.C., 29 September 2011 – The countries of the Americas, with support from the Pan American Health Organization/World Health Organization (PAHO/WHO), will work together to create national programs for the care and treatment of epilepsy, a neurological disorder that affects some 5 million people in the Americas.
Full release - English
Full release - Spanish
European Declaration on Epilepsy PASSED in European Parliament
A Written Declaration on Epilepsy was passed in the European Parliament yesterday, 15th September 2011. Submitted by the European Advocates for Epilepsy Working Group in collaboration with Epilepsy Advocacy Europe – a joint task force of the International League Against Epilepsy and the International Bureau for Epilepsy, approval of the declaration marks a significant step in the efforts of both groups to increase the quality of life of people with epilepsy. Read complete news release
Colombian Law Provides Protection for Individuals Suffering from Epilepsy
The law for protecting the rights of people with epilepsy came into force in Colombia November 11, 2010. The effort to create this law began 40 years ago, and the initiative was first met with indifference and inaction. The Colombian League Against Epilepsy found a champion in Senator Manuel Virgũez who assisted in the writing of the law and led it through the complex legislative process. The law went into effect after the Constitutional Court of Colombia ruled that the law was constitutional, citing that people with epilepsy needed enhanced legal protection. The law is placed on the web site to provide an example of how such laws can be written and of the many issues and roadblocks that are faced by people with epilepsy.
Colombian Law 1414-10 - Protection for individuals suffering from epilepsy
Colombian Law 1414-10 - Protection for individuals suffering from epilepsy - Spanish
Institute of Medicine undertakes study of epilepsy in the US
The following is copied from the Institute of Medicine (IOM) web site
“The IOM is undertaking a new study that will consider the public health dimensions of the epilepsies in the United States—including health care and human services, health literacy, and education. The IOM will recommend priorities in these areas in order to better understand the public health impact of the epilepsies and to meet the needs of people with epilepsy and their caregivers. Specifically, the IOM will focus on the following questions:
- How can the public health burden of epilepsy for patients and families be more accurately assessed?
- What priorities for future population health studies could inform treatment and prevention?
- How can the access to health and human services and the quality of care for people with epilepsy be improved?
- How can the education and training of professionals who work with people with epilepsy be improved?
- How can the understanding of epilepsy in patients and the general public be improved to create supportive communities?"
More at http://iom.edu/Activities/Disease/Epilepsy
USF lends epilepsy expertise to build programs in Dominican Republic
The trip was part of the travel award the USF/Tampa General Hospital Comprehensive Epilepsy Program earned last year from the International League Against Epilepsy (ILAE) to partner with and develop comprehensive epilepsy programs in Latin American. The USF/TGH program was one of four centers selected nationally for the ILAE award. Read more
Medical Specialists Mount International Effort to Restore Critical Epilepsy Services in Haiti
The international community of epilepsy specialists is providing financial support and specialized medical equipment contributed by its manufacturer to help re-establish services to epilepsy patients in Haiti halted by the devastating earthquake. Read more
First IBRO/ILAE Neuroscience School:
Fundamentals on epilepsy: Neurobiological, clinical and therapeutic approaches.
Sunlodge Hotel, Accra, Ghana - January 16 – 22, 2010. Read more
Epilepsy: Global Issues for the Practicing Neurologist
With kind permission of the World Federation of Neurology we are please to make available to you a publication from the WFN's Seminars in Clinical Neurology series "Epilepsy: Global Issues for the Practicing Neurologist." This publication was chaired by Jerome Engel of the University of California at Los Angeles with a panel of international experts. The focus is on issues that are more commonly faced in the developing world, but this book also has broader application. You can find this publication on the web site of the WFN (www.wfneurology.org). The WFN site also has other publications in the Clinical Neurology series that you may find of interest. Read more
EU Clinical Trials Registry
The EU Clinical Trials Registry was launched today by the European Medicines Agency (EMA). The online register gives for the first time public access to information on interventional clinical trials for medicines authorised in the 27 EU Member States and Iceland, Liechtenstein and Norway. The database also allows the public to search for information on clinical trials authorised to be carried out outside the EU if these trials are part of a paediatric investigation plan.
Full News Release
EU Clinical Trials Registry
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