National Public Policy Activities
Epilepsy in Guatemala
During their recent visit to Guatemala, Samuel Wiebe, president of the International League Against Epilepsy (ILAE), Mario Alonso-Vanegas, member of the commission for surgical therapies, and Lilia Nuñez vice-president for Latin America of the International Bureau for Epilepsy (IBE) participated in several events aimed at increasing the visibility of epilepsy as a global health issue. Especially noteworthy among these events was a meeting at the Republic of Guatemala Congress with the Health and Social Assistance Commission presided by Congresswoman Karla Martínez and the second legislative vice-president, representative Eduardo Ramiro de Matta. Read more about Epilepsy in Guatemala.
Epilepsy and Law in India
Published jointly by the Indian Epilepsy Association and the Indian Epilepsy Society in 2017 and formally released during the inaugural function of the joint Annual conference of the IEA and IES at Patna on February 17, 2017.
The purpose is to make this data readily available to people with epilepsy, their caregivers, physicians, and the general public. Note that the intent is solely to make available the various provisions under the Indian Law. Users must make the final decision about their individual situation after verifying the facts in consultation with the legal experts. Epilepsy and Law in India
New CDC Report: Risk Factors of Epilepsy Outcomes: Comorbidities in a Population with Epilepsy
This report describes outcomes from the South Carolina Epilepsy Surveillance System (SCESS). The SCESS is the only statewide epilepsy surveillance system based on administrative data, coordinated by the Medical University of South Carolina and state agencies, with CDC support (FY02-FY14). SCESS estimates incidence, prevalence, mortality, and associated risk factors, access to care/specialty care, and sociodemographic characteristics, using existing statewide ICD-9-CM coded data sets (2000-2014) representing: hospitalizations, hospital ED visits, and physician office visits. Read executive summary: Risk Factors of Epilepsy Outcomes Comorbidities in Population with Epilepsy
Brazilian Ministry of Health to intensify assistance to Epilepsy in 2013
The national government will start to put into practice instructions of the Pan-American Plan of Action on the disease.
The care of patients with epilepsy in Brazil is bound to have progress in the year of 2013. The discussion on how to improve attention of people with this disease in primary, secondary and tertiary care started in a meeting held in the Ministry of Health, in Brasilia, December 19, 2012. Read full report on Brazil Ministry of Health to intensify assistance to Epilepsy in 2013
US Institute of Medicine publishes report, "Epilepsy Across the Spectrum, Promoting Health and Understanding"
The IOM report addresses the many obstacles faced by people with epilepsy and their caregivers in obtaining the necessary care. Although the report was written to address the situation in the United States, a quick review of the findings show that the recommendations can be applied in most countries. The issues are familiar to everyone in the epilepsy community: lack of access to appropriate care, failure to address the broad psychosocial consequences of the disease, poor knowledge and understanding of epilepsy by the public and broader medical community and the stigma of having epilepsy which keeps the disease hidden even though it is one of the most common neurological disorders. All of these problems are laid out in great detail in this report. Read Institute of Medicine Report, "Epilepsy Across the Spectrum"
Colombian Law Provides Protection for Individuals Suffering from Epilepsy
The law for protecting the rights of people with epilepsy came into force in Colombia November 11, 2010. The effort to create this law began 40 years ago, and the initiative was first met with indifference and inaction. The Colombian League Against Epilepsy found a champion in Senator Manuel Virgũez who assisted in the writing of the law and led it through the complex legislative process. The law went into effect after the Constitutional Court of Colombia ruled that the law was constitutional, citing that people with epilepsy needed enhanced legal protection. The law is placed on the web site to provide an example of how such laws can be written and of the many issues and roadblocks that are faced by people with epilepsy.
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