Epilepsy Awareness Day & Expo at Disneyland Resort
November 5 - 7, 2018
12 September, 2018
Epilepsy Awareness Day at Disneyland Resort (EADDL) 2018 at Disneyland Park
November 7, 2018: 10:00 a.m. until closing.
Disneyland Resort, Anaheim, CAf
Purchase tickets before October 5
FREE Epilepsy Awareness and Education Expo
November 5, 2018: 10:00 a.m. - 5:00 p.m.
November 6, 2018: 8:00 a.m. - 4:00 p.m.
Disneyland Hotel's North and South Exhibit Hall
The EXPO will feature over 60 Non-Profit support groups, several Epilepsy centers, Drug and related product manufacturers, seizure dogs and their trainers, and epilepsy professionals from around the world.
Join over 2,000 anticipated ticketed participants as we flood the Disneyland Park in our EADDL purple event T-Shirts, on what would otherwise be an ordinary day!
Get more information and register here: www.epilepsyawarenessday.org
EADDL is the combined effort of one family’s thankfulness for their daughter’s recovery (9 years since surgery & her last seizure) and a united community’s passion for winning the fight against epilepsy.
Sofie Levy’s school day was almost always cut short. She’d suffer a seizure at noon and spend the rest of the day recovering from it. Medication was no help.
Nine years ago, the now 18 year- old underwent surgery to remove a part of her brain that her parents called “the troublemaker” which stilled the chaotic electrical storms in her head. Sofie’s freedom from seizures inspired Sofie and her folks to create Epilepsy Awareness Day at the Disneyland Resort, which returns November 5-7, 2018 for it’s SIXTH year. EADDL needs to bring this misunderstood condition that will develop in 1 of every 26 people at some point in their lifetime, to light.
This year EADDL will be partnering with the International League Against Epilepsy (ILAE) and working with international and national leaders such as The Danny Did Foundation (DDF), Epilepsy Foundation (EF) and Citizens United for Research in Epilepsy (CURE) for their commitment in uniting the world’s epilepsy communities. This year’s event is expected to draw approximately 100 epilepsy support groups and 2,000 people from many continents, as far away as the UK, Germany, South America, Australia, and to Anaheim, California.
“We are so proud to be partnering with the world recognized governing body for epilepsy advocacy”, says Candy Levy event coordinator, and most importantly Sofie’s Mom.“When Sofie’s surgeon, Dr Gary Mathern said that his friends at the ILAE wanted to talk to us about pushing for international unity, we couldn’t wait to be a part.”
Sofie was lucky, we could get to the source of the seizures. Stopping the seizures allowed the other parts of her brain to function well so she could live well. Surgery was her best option, it doesn’t always have to the last option. Since surgery she has been seizure free, she is finishing 12th grade in high school, with a special interest in writing, music & ASL. She’s currently learning to drive and she is also studying Neurodiagnostics, so that can soon be working as an EEG Tech. The Levy family business is a private, in-home EEG monitoring service, catering to kids/adults specializing in Autism & Epilepsy.
In addition to gathering folks this November, a new found focus for this event will be to spread awareness all year long with continued updates from physician advisors, blogs, new articles from Epilepsy industry leaders and more, all on our newly updated website and social media presence. “We’re hoping that all of our guests will go back to their home towns and spread the word that there is now an international day for hope. We’re just super excited.” said Brad Levy, event director.
Join us as we flood the Disneyland Park in our purple 2018 EADDL event t-shirts!
Subscribe to the ILAE Newsletter
To subscribe, please click on the button below.