ILAE-Africa Goals for the 2017-2021 term:
- Promotion of Epilepsy Awareness.
- Improving Access to Epilepsy Care.
- Conduct training in epilepsy and strengthen the education activities of ILAE-Africa.
- Foster Epilepsy Research in the Region.
- Multiply ILAE membership in the region
Challenges to Epilepsy care in the ILAE-Africa region:
- Highest incidence and prevalence of active epilepsy compared to that of all other continents.
- High levels of stigma and low community awareness of epilepsy.
- Lack of basic infrastructure for adequate management.
- Large epilepsy treatment gap estimated at over 80%.
- Lack of established standardized treatment guidelines for epilepsy and weak referral systems.
- Limited human resource trained to take care of people with Epilepsy (PWE).
- Poor linkage between governments, regional and national epilepsy associations, and funding agencies in supporting epilepsy work.
Planned activities for the ILAE-Africa region in 2019:
- Conduct the 4th African Epilepsy Congress (AEC) in Kampala, Uganda, August 2019.
- Conduct a PET Lusophone teaching course, venue and dates TBD. Course materials have already been translated into Portuguese.
- Conduct a PET Anglophone teaching course at the 4th AEC pre-congress in Kampala, Uganda- August 2019.
- Conduct a joint IBRO/ ILAE-Africa Anglophone teaching course at the 4th AEC pre-congress in Kampala, Uganda- August 2019.
- To annually support participation of African trainees in Epilepsy distance learning courses (eg. VIREPA, San Servolo) by provision of bursaries.
- Organize regional epilepsy awareness raising campaigns-for English and French speaking countries.
- To establish the Epilepsy research needs on the continent.
- Foster South to South Epilepsy related research collaborations in the region.
- To increase on the number of countries joining the ILAE on the continent.
- To continue the the bi-annual production of the News E-Report “Epilepsy News Africa”.
Factors predicting cessation of status epilepticus in clinical practice – data from a prospective observational registry (SENSE)
In clinical practice, treatment guidelines were not followed in a substantial proportion of patients. This under‐dosing correlated with lack of cessation of SE. Our data suggest that sufficiently dosed benzodiazepines should be used as first treatment step.
4 February, 2019
Mark your calendar! International Epilepsy Day is a special event which promotes awareness of epilepsy in more than 120 countries each year. Every year on the second Monday of February people join together to celebrate and highlight the problems faced by people with epilepsy, their families and…
14 January, 2019
In previously seizure‐free patients, switching the manufacturer of antiepileptic medications was associated with a higher risk for seizure recurrence. Our retrospective approach does not allow us to determine whether other changes in medical care at the same time could contribute to the recurrence. However, it would be prudent to avoid switching the manufacturer of anticonvulsants in seizure‐free patients. Ann Neurol 2018;84:918–925
2 January, 2019
EpiCARE connects 28 specialist centres in 13 European countries with world experts in the field of epilepsy with the aim of diagnosing and treating rare epilepsies. In this video, see the story of Onni, a 4 years old Finnish boy referred to EpiCARE by his consultant to seek advice.
17 December, 2018
A large study to find new epilepsy genes was undertaken by more than 150 researchers from multiple centres in the UK, Europe, USA, Brazil, Hong Kong and Australia as part of the International League Against Epilepsy Consortium on Complex Epilepsies. The results tripled the number of known genetic associations for epilepsy and importantly implicated 11 new genes.
10 December, 2018
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