League Against Epilepsy
Commission/officer Report Form
Commission on Healthcare Policy
Date: January 27, 2003
Report By: Charles E. Begley, Ph.D., Chair
Gus Baker, England
Ettore Beghi, Italy
Charles Begley, USA
Michael Halpern, USA
John Langfitt, USA
Pierre Levy, France
Christoph Pathlatko, Switzerland
Patricia Shafer, USA
Samuel Wiebe, Canada
To develop a template for a common reporting system that could
be used to describe and evaluate epilepsy-related healthcare systems
and policies across countries, and serve as a basis for developing
a global health policy.
- Conduct studies to determine what is known about the systems
and policies that affect need, access, quality, cost, and financing
of epilepsy-related healthcare in different countries, the major
sources of knowledge of these systems and policies, and what is
needed to improve knowledge.
- Design and apply a template to carry out comparative analyses
of healthcare systems and policies in different countries.
- Recommend a template for a common reporting system that could
be used by the ILAE in developing a global health policy.
Summary of Activities for 2002
The full commission met in October 2002 in Madrid, Spain during
the European Congress on Epileptology to develop the following plan
to achieve its goals.
02-03 - Conduct country studies addressing the following: 1) What
is known about epilepsy-related healthcare systems/policies in developing
and developed countries? 2) What are the major sources of knowledge?
3) What is not known? 4) What is needed to improve knowledge of
care systems/policies? Assess existing country reports of ILAE chapters
and other data sources. Assess healthcare systems/policies with
respect to healthcare access, quality, cost, and financing of care.
Update plans and review activities during telephone meeting in February.
Report findings at a workshop and scientific session in Tunis.
03-04 Design and apply a template for comparative analyses of healthcare
systems and policies affecting people living with epilepsy in different
countries. Refine individual country studies following the comparative
template. Report findings at a workshop during the European Congress
04-05 Prepare papers and reports for a workshop and scientific
session in France on a framework for comparative analyses of healthcare
systems and policies in individual country studies, and consider
implications for global policy. Develop Epilepsia supplement and
Interaction with ILAE Committees and Commissions
Advise the ILAE on a common reporting system for comparative analyses
of healthcare systems and policies across countries.
Interaction with ILAE Chapters
Survey and review country reports on existing healthcare systems
and policies. Responses can provide opportunities for cooperation
in assessing the nature of these reports, how they differ, and how
they can be improved.
Abstract for Scientific Session at International Congress in
Title: ILAE Commission on Healthcare Policy: How to Reduce the
Burden of Epilepsy? An International Comparison on Quality, Cost,
and Access to Epilepsy Care
Overview of Purpose and Current Status: Christoph Pachlatko
USA: John Langfitt
UK: Gus Baker
France: Pierre Levy
Italy: Ettore Beghi
South Africa: James Butler
Summary: Charles Begley
The purpose of this session is to summarize the results of country
studies of healthcare systems/polices that affect people with epilepsy,
and determine what can be compared.
Annual Report 2002 Table of Contents