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Commission on Healthcare Policy

International League Against Epilepsy

Commission/officer Report Form

Commission on Healthcare Policy

Date: January 27, 2003

Report By: Charles E. Begley, Ph.D., Chair

Commission Members

Gus Baker, England
Ettore Beghi, Italy
Charles Begley, USA
Michael Halpern, USA
John Langfitt, USA
Pierre Levy, France
Christoph Pathlatko, Switzerland
Patricia Shafer, USA
Samuel Wiebe, Canada

Mission

To develop a template for a common reporting system that could be used to describe and evaluate epilepsy-related healthcare systems and policies across countries, and serve as a basis for developing a global health policy.

Goals

  1. Conduct studies to determine what is known about the systems and policies that affect need, access, quality, cost, and financing of epilepsy-related healthcare in different countries, the major sources of knowledge of these systems and policies, and what is needed to improve knowledge.
  2. Design and apply a template to carry out comparative analyses of healthcare systems and policies in different countries.
  3. Recommend a template for a common reporting system that could be used by the ILAE in developing a global health policy.

Summary of Activities for 2002

The full commission met in October 2002 in Madrid, Spain during the European Congress on Epileptology to develop the following plan to achieve its goals.

02-03 - Conduct country studies addressing the following: 1) What is known about epilepsy-related healthcare systems/policies in developing and developed countries? 2) What are the major sources of knowledge? 3) What is not known? 4) What is needed to improve knowledge of care systems/policies? Assess existing country reports of ILAE chapters and other data sources. Assess healthcare systems/policies with respect to healthcare access, quality, cost, and financing of care. Update plans and review activities during telephone meeting in February. Report findings at a workshop and scientific session in Tunis.

03-04 Design and apply a template for comparative analyses of healthcare systems and policies affecting people living with epilepsy in different countries. Refine individual country studies following the comparative template. Report findings at a workshop during the European Congress in Venice.

04-05 Prepare papers and reports for a workshop and scientific session in France on a framework for comparative analyses of healthcare systems and policies in individual country studies, and consider implications for global policy. Develop Epilepsia supplement and Commission report.

Interaction with ILAE Committees and Commissions

Advise the ILAE on a common reporting system for comparative analyses of healthcare systems and policies across countries.

Interaction with ILAE Chapters

Survey and review country reports on existing healthcare systems and policies. Responses can provide opportunities for cooperation in assessing the nature of these reports, how they differ, and how they can be improved.

Abstract for Scientific Session at International Congress in Tunis

Title: ILAE Commission on Healthcare Policy: How to Reduce the Burden of Epilepsy? An International Comparison on Quality, Cost, and Access to Epilepsy Care

Preliminary Program:

Overview of Purpose and Current Status: Christoph Pachlatko
USA: John Langfitt
UK: Gus Baker
France: Pierre Levy
Italy: Ettore Beghi
South Africa: James Butler
Summary: Charles Begley

The purpose of this session is to summarize the results of country studies of healthcare systems/polices that affect people with epilepsy, and determine what can be compared.

 


Annual Report 2002 Table of Contents

 

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