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Commission Members
Svein Johannessen, Chair
Akershu, Norway |
Emilio Perucca, Secretary
Bologna, Italy |
Meir Bialer, Treasurer
Jerusalem, Israel |
Michel Baulac
Paris, France |
Christian Elger
Bonn, Germany |
Alla Guekht
Moscow, Russia |
Kristina Malmgren, Secretary
European Advisory Council
Goteborg, Sweden |
Federico Vigevano, Chair
European Advisory Council
Roma, Italy |
Peter Wolf, Chair
European Epilepsy Academy
Copenhagen, Denmark |
Martin Brodie,
Regional representative
Glasgow, Scotland |
Giuliano Avanzini, ILAE
Milano, Italy |
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Subcommissions
Bursaries, Madrid congress Chair: Santiago Arroyo
Congress evaluation
Madrid Chair: Antonio Gil-Nagel
Bursaries, Vienna congress Chair: José Serratosa
Congress evaluation, Vienna Wolfgang Serles
Central/Eastern Europe Chair: Alla Guekht
Working Group on Development of Quality Care
Chair: Peter Wolf
Aims
To stimulate and coordinate all aspects of epileptology across
Europe, including organising the European Congress on Epileptology.
Achievements prior to July 2003
International Course: From basic knowledge to rational prescribing
in epilepsy. A course at the International School of Neurological
Sciences in Venice under the aegis of the ILAE Commissions on
European Affairs and Therapeutic Strategies, and the European
Epilepsy Academy, San Servolo, Venice July 10-19 2003.
The Subcommission on Central/Eastern Europe. A plan is set out
in areas related to education, quality of care, and research. A
workshop on Clinical Trials of AEDs in Eastern Europe was held
on July 17, 2003 in conjunction with the San Servolo summer course
with invited participants from ILAE chapters.
Publications: Malmgren K, Flink R, Guekht AB, Michelucci R, Neville
B, Pedersen B, Pinto F, Stephani U, Özkara C. ILAE Commission
on European Affairs Subcommission on European Guidelines 1998-2001:
The Provision of Epilepsy Care Across Europe. Epilepsia, 2003;
44:727-31.
Commission Activities
July 31, 2003 to June 30, 2004
Meetings: October 16, 2003, Lisbon; February 14, 2004, ILAE Office,
Brussels
Publications: Gil-Nagel A, Perucca E, Garcia-Morales I, Arroyo
S, Serratosa JM. Subcommission on Congress Evaluation of the ILAE
Commission on European Affairs. Evaluations and awards at the fifth
European Congress of Epileptology, Madrid, 6-10 October 2002. Epilepsia.
2004 Apr;45(4):396-8.
The Subcommission on Central/Eastern Europe. A plan is set out
in areas related to education, quality of care, and research. The
last meeting was held during the Vienna congress with participation
of delegates from a number of chapters. Future activities will
focus on four areas:1) development of an outcome study project,
within the context of EUCARE, 2) promotion of clinical trials in
Central/Eastern Europe, 3) education, in collaboration with EUREPA,
4) implementation of epidemiological studies to acquire information
about regional differences in quality of care and to stimulate
collaboration among physicians in the area.
A faculty consisting of CEA members contributed
to the conference on Epilepsy: Social Aspects, Diagnosis and Treatment,
which was a part of the Russian National Congress on Man and
Medicine in Moscow in April 2004, a large medical congress attended
by about 22,000 delegates from Russia and FSU countries. The
1,000 delegates who attended the epilepsy program were provided
with printed educational material supplied by faculty members.
A workshop on refractory epilepsy and epilepsy surgery was held
at the Burdenko Institute of Neurosurgery
in Moscow and an educational course was held
in Chita.
Working Group on Development of Quality of Care. The
initial task is to contact national European ILAE chapters enquiring
about availability and/or needs
of tertiary care centers, then evaluate responses, consult with
relevant third parties and develop a
project aimed at establishing a model tertiary care epilepsy
center or unit in an underserved European country or region. The
Working Group in collaboration with the EAC held a successful Chapter
Convent during the Vienna congress.
EURAP. The CEA supports the international registry aimed at assessing
the comparative teratogenic risks of prenatal exposure to different
antiepileptic drugs. The project is chaired by T. Tomson, Sweden.
Over 4,000 pregnancies have been registered to date.
European Congresses on Epileptology. The 6th European Congress
was held in Vienna 30 May - 3 June. Svein Johannessen and Gerhard
Bauer
co-chaired the International Organizing Committee, and Christoph
Baumgartner chaired the Scientific Advisory Committee. A system
for CME credits was established.
The congress attracted a total of 3,408 participants from 89 countries.
Based on the feedback the
congress was very successful, both scientifically and socially.
Bursaries 50,000 Euro were allocated from the
congress budget for a Travel Bursary Fund for the congress. The
age limit for application for assistance from the fund was raised
from 35 to 40 years. Selection criteria for the congress was
adhered to
rigorously and abstracts submitted by all those qualifying for
a Travel Bursary were scrutinised by the Travel Bursary Subcommission
which awarded 51 Travel Bursaries based on abstract quality and
age criteria. Special consideration was given to applicants from
Eastern Europe. CEA Bursary for Central/Eastern Europe. This new
bursary system was jointly coordinated by the Subcommission on
Central/Eastern Europe. Each European Chapter was given the opportunity
to send one representative to the congress, with a particular aim
of increasing attendance at the European Chapter Convention on
29 May and the Eastern European Discussion Group Session on 3 June.
Each participant was offered complimentary registration (charged
at the early junior registration rate), return economy flight travel
to Vienna and up to 6 nights accommodation in Vienna. Out of the
total 22 Central/Eastern European Chapters, 16 participants accepted
support under this bursary scheme.
European Epileptology Prize. For the second time CEA supported
the European Epileptology Prize (EUR 10,000). The winner was Charlotte
Dravet, France.
Upcoming Activities
Future European Epilepsy Congresses 2006. The 7th European Congress
will be held in Helsinki. Svein Johannessen and Matti Sillanpää will
co-chair the International Organizing Committee, and Retta Kälviainen
will chair the Scientific Advisory Committee.
2008. The 8th European Congress will be held in Germany in collaboration
with the German and Israeli chapters, with Greece as backup.
Continue with plans for subcommission activities and other ongoing
activities.
On 21 April, 2005 the International Conference Epilepsy—epidemiology,
treatment and quality of life of the Russian National Man and Medicine
Congress (18-22 April) will take place in Moscow. One thousand
delegates from Moscow and other regions of Russia will participate
in the meeting. After the Congress, 24-26 April, there will be
an Educational Course on Epilepsy in Yaroslavl region. The event
is organised by the All-Russian Society of Neurologists and the
Commission of European Affairs of the ILAE (Subcommission for Central/Eastern
Europe).
18-25 September, 2005, an International Educational Course: Pharmacological
Treatment of Epilepsy will take place in Eilat, Israel under the
auspices of the Eilat Conferences Organising Committee, the Commission
on European Affairs and the European Epilepsy Academy.
Svein Johannessen
Chair
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