Preclinical Common Data Elements Discussion

A request for community feedback by the ILAE/AES Joint Translational Task Force

The TASK3 group of the International League Against Epilepsy (ILAE) / American Epilepsy Society (AES) Joint Translational Task Force, in collaboration with the NINDS, has created a first set of preclinical common data elements (CDEs) to be used in preclinical epilepsy research studies aiming to develop better treatments for seizures, epilepsies and comorbidities. This project aims to facilitate collaborations across labs, creation of big databases to deposit such data, as well as help comparisons of findings across different studies.

To optimize the product, the TASK3 group leaders of ILAE/AES Joint Translational Task Force is requesting community feedback from our colleagues involved in such studies. The comments received will be reviewed by the TASK3 group of the ILAE/AES Joint Translational Task Force members to implement necessary revisions to these products. The scope of the requested feedback is described in this editorial:

Special Issue on the TASK3 Preclinical epilepsy CommonData Elements (CDEs) of the ILAE/AES Joint Translational Task Force: Peer review process, acknowledgement to reviewers, and community feedback

The full set of companion papers, case report forms and common data element charts can be downloaded from the Epilepsia Open® supplement website that is dedicated to the TASK3 epilepsy preclinical CDEs: onlinelibrary.wiley.com/toc/24709239/2018/3/S1

Draft reports of this supplement:

The manuscript will be open for comments for two months, until December 31, 2018. All comments will be placed on this page as they are received and will include the name of each writer. At the end of that time, the comments will remain public, and the TASK3 group of the ILAE/AES Joint Translational Task Force will review the comments and make appropriate changes.

Please send your comments to Deb Flower, who will post them to this web page as they become available.

Thank you for your help in this important effort of the ILAE.

Aristea Galanopoulou, MD PhD, Co-chair, ILAE/AES Joint Translational Task Force

Helen Scharfman, PhD, Jacqueline French, MD, Vicky Whittemore, PhD
Co-leaders of the TASK3 of the ILAE/AES Joint Translational Task Force

Lauren Harte-Hargrove, PhD, Past project manager of the ILAE/AES Joint Translational Task Force