ILAE-Africa Goals for the 2017-2021 term:
- Promotion of Epilepsy Awareness.
- Improving Access to Epilepsy Care.
- Conduct training in epilepsy and strengthen the education activities of ILAE-Africa.
- Foster Epilepsy Research in the Region.
- Multiply ILAE membership in the region
Challenges to Epilepsy care in the ILAE-Africa region:
- Highest incidence and prevalence of active epilepsy compared to that of all other continents.
- High levels of stigma and low community awareness of epilepsy.
- Lack of basic infrastructure for adequate management.
- Large epilepsy treatment gap estimated at over 80%.
- Lack of established standardized treatment guidelines for epilepsy and weak referral systems.
- Limited human resource trained to take care of people with Epilepsy (PWE).
- Poor linkage between governments, regional and national epilepsy associations, and funding agencies in supporting epilepsy work.
Planned activities for the ILAE-Africa region in 2019:
- Conduct the 4th African Epilepsy Congress (AEC) in Kampala, Uganda, August 2019.
- Conduct a PET Lusophone teaching course, venue and dates TBD. Course materials have already been translated into Portuguese.
- Conduct a PET Anglophone teaching course at the 4th AEC pre-congress in Kampala, Uganda- August 2019.
- Conduct a joint IBRO/ ILAE-Africa Anglophone teaching course at the 4th AEC pre-congress in Kampala, Uganda- August 2019.
- To annually support participation of African trainees in Epilepsy distance learning courses (eg. VIREPA, San Servolo) by provision of bursaries.
- Organize regional epilepsy awareness raising campaigns-for English and French speaking countries.
- To establish the Epilepsy research needs on the continent.
- Foster South to South Epilepsy related research collaborations in the region.
- To increase on the number of countries joining the ILAE on the continent.
- To continue the the bi-annual production of the News E-Report “Epilepsy News Africa”.
It is with great sadness that we report that Professor Paul Gighuri Kioy passed away with complications of COVID-19 on 7th January 2021. Professor Kioy made significant contributions to the study of epilepsy and epilepsy care in Kenya and sub-Saharan Africa. Read full tribute to Paul Kioy.
18 January, 2021
IBE-Africa is looking for an Advocacy Trainer to conduct capacity building in the form of training for CSOs working on lobbying and advocating for epilepsy inclusion.
25 January, 2021
Applications are now being accepted for funds for a two year research project aimed at understanding the pathogenesis of Dravet syndrome and paving the way to new treatments.
19 January, 2021
This article examines the potential impact of FUS (Focused ultrasound) on the landscape of brain therapies as well as the challenges facing further advancement and broader adoption of this promising minimally invasive therapeutic alternative.
7 January, 2021
From Monday, January 4th to International Epilepsy Day – Monday February 8th, the International Bureau for Epilepsy encourages everyone to walk to raise awareness, improve visibility, and to increase understanding of epilepsy.
4 January, 2021
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