ILAE-Africa Goals for the 2017-2021 term:
- Promotion of Epilepsy Awareness.
- Improving Access to Epilepsy Care.
- Conduct training in epilepsy and strengthen the education activities of ILAE-Africa.
- Foster Epilepsy Research in the Region.
- Multiply ILAE membership in the region
Challenges to Epilepsy care in the ILAE-Africa region:
- Highest incidence and prevalence of active epilepsy compared to that of all other continents.
- High levels of stigma and low community awareness of epilepsy.
- Lack of basic infrastructure for adequate management.
- Large epilepsy treatment gap estimated at over 80%.
- Lack of established standardized treatment guidelines for epilepsy and weak referral systems.
- Limited human resource trained to take care of people with Epilepsy (PWE).
- Poor linkage between governments, regional and national epilepsy associations, and funding agencies in supporting epilepsy work.
Planned activities for the ILAE-Africa region in 2019:
- Conduct the 4th African Epilepsy Congress (AEC) in Kampala, Uganda, August 2019.
- Conduct a PET Lusophone teaching course, venue and dates TBD. Course materials have already been translated into Portuguese.
- Conduct a PET Anglophone teaching course at the 4th AEC pre-congress in Kampala, Uganda- August 2019.
- Conduct a joint IBRO/ ILAE-Africa Anglophone teaching course at the 4th AEC pre-congress in Kampala, Uganda- August 2019.
- To annually support participation of African trainees in Epilepsy distance learning courses (eg. VIREPA, San Servolo) by provision of bursaries.
- Organize regional epilepsy awareness raising campaigns-for English and French speaking countries.
- To establish the Epilepsy research needs on the continent.
- Foster South to South Epilepsy related research collaborations in the region.
- To increase on the number of countries joining the ILAE on the continent.
- To continue the the bi-annual production of the News E-Report “Epilepsy News Africa”.
Mark your calendar! International Epilepsy Day is a global event celebrated annually on the 2nd Monday of February, to promote awareness of epilepsy. With IBE and ILAE representation in more than 120 countries, this is a powerful opportunity to highlight the problems faced by people with epilepsy, their families and carers, in every region of the world.
15 January, 2020
Long-term overall employment rates were higher compared to most previous studies on surgery in adults. Seizure-free patients with a preoperative IQ ≥70 showed rates of full-time employment similar to the general population. Further research is needed to determine whether this also applies for occupational complexity and wages. (Neurology December 2019)
14 January, 2020
It is with great pleasure that National Epilepsy Centre, Karachi announces a major publication based on ~30 years of sustained effort by a group of volunteers in reducing Treatment Gap and Stigma in Pakistan. The design and approach of this achievement is unique; has never been used by any other…
9 December, 2019
The latest article completed by the ILAE Wikipedia Project is Seizure and epilepsy classification. We are pleased to feature its primary author, Dr Fedele Dono.
4 December, 2019
In 2020, the ILAE Academy will launch a series of case-based e-Learning modules for epileptology for Level 1 (Entry) addressing all learning objectives specified in the recently published curriculum. To prepare the launch, the ILAE Academy announced an exclusive Pilot Phase. Within 18 hours of the announcement, all pilot openings had been filled, and others had been put on a waiting list.
18 November, 2019
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