ILAE-Africa Goals for the 2017-2021 term:
- Promotion of Epilepsy Awareness.
- Improving Access to Epilepsy Care.
- Conduct training in epilepsy and strengthen the education activities of ILAE-Africa.
- Foster Epilepsy Research in the Region.
- Multiply ILAE membership in the region
Challenges to Epilepsy care in the ILAE-Africa region:
- Highest incidence and prevalence of active epilepsy compared to that of all other continents.
- High levels of stigma and low community awareness of epilepsy.
- Lack of basic infrastructure for adequate management.
- Large epilepsy treatment gap estimated at over 80%.
- Lack of established standardized treatment guidelines for epilepsy and weak referral systems.
- Limited human resource trained to take care of people with Epilepsy (PWE).
- Poor linkage between governments, regional and national epilepsy associations, and funding agencies in supporting epilepsy work.
Planned activities for the ILAE-Africa region in 2019:
- Conduct the 4th African Epilepsy Congress (AEC) in Kampala, Uganda, August 2019.
- Conduct a PET Lusophone teaching course, venue and dates TBD. Course materials have already been translated into Portuguese.
- Conduct a PET Anglophone teaching course at the 4th AEC pre-congress in Kampala, Uganda- August 2019.
- Conduct a joint IBRO/ ILAE-Africa Anglophone teaching course at the 4th AEC pre-congress in Kampala, Uganda- August 2019.
- To annually support participation of African trainees in Epilepsy distance learning courses (eg. VIREPA, San Servolo) by provision of bursaries.
- Organize regional epilepsy awareness raising campaigns-for English and French speaking countries.
- To establish the Epilepsy research needs on the continent.
- Foster South to South Epilepsy related research collaborations in the region.
- To increase on the number of countries joining the ILAE on the continent.
- To continue the the bi-annual production of the News E-Report “Epilepsy News Africa”.
This is the ﬁrst global report on epilepsy produced by WHO and key partners. It highlights the available evidence on the burden of epilepsy and the public health response required at global, regional and national levels.
20 June, 2019
It is with great sadness that we announce that Frederick Andermann, Emeritus Professor at the Montreal Neurological Institute of McGill University, passed away on Sunday June 16 in Montreal, at the age of 88. Dr. Andermann was a giant of epilepsy with contributions in numerous areas of clinical…
Epilepsy Society Uganda (EPISOU) has been very active under the leadership of Dr. Angelina Kakooza, President, and in 2018, they held a series of Pediatric Epilepsy Training (PET) courses as well as a Symposium on Epilepsy in Children.
18 June, 2019
This WHA Side event will bring together policy makers, NGOs, patients, health care leaders and Member States to develop next steps for implementing Resolution WHA68.20. Ministries of Health from different WHO regions will identify the underlying systemic issues that affect access to universal health care (UHC) and essential medicines for persons with epilepsy in their regions. The newly crafted Global Epilepsy report will be presented, and key directions for an Epilepsy Action Plan will be identified. The speakers will address the barriers to epilepsy care, make recommendations to strengthen systems and practices, and issue a call for urgent action by all key stakeholders nationally and internationally.
14 May, 2019
It is with great sadness that we announce the death of Prof. Colin David Binnie, clinical neurophysiologist, on 21st March 2019. Colin had a long and distinguished career in clinical neurophysiology. Colin played a major role in a number of early phase drug studies, notably the early studies of Lamotrigine and developed the model of photosensitivity as a method for acute single dose efficacy studies of potential AEDs. Also he was active as initiator or participant in a number of international projects in the fields of computer assisted spike detection and digital EEG.
9 May, 2019
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