ILAE-Africa Goals for the 2017-2021 term:
- Promotion of Epilepsy Awareness.
- Improving Access to Epilepsy Care.
- Conduct training in epilepsy and strengthen the education activities of ILAE-Africa.
- Foster Epilepsy Research in the Region.
- Multiply ILAE membership in the region
Challenges to Epilepsy care in the ILAE-Africa region:
- Highest incidence and prevalence of active epilepsy compared to that of all other continents.
- High levels of stigma and low community awareness of epilepsy.
- Lack of basic infrastructure for adequate management.
- Large epilepsy treatment gap estimated at over 80%.
- Lack of established standardized treatment guidelines for epilepsy and weak referral systems.
- Limited human resource trained to take care of people with Epilepsy (PWE).
- Poor linkage between governments, regional and national epilepsy associations, and funding agencies in supporting epilepsy work.
Planned activities for the ILAE-Africa region in 2019:
- Conduct the 4th African Epilepsy Congress (AEC) in Kampala, Uganda, August 2019.
- Conduct a PET Lusophone teaching course, venue and dates TBD. Course materials have already been translated into Portuguese.
- Conduct a PET Anglophone teaching course at the 4th AEC pre-congress in Kampala, Uganda- August 2019.
- Conduct a joint IBRO/ ILAE-Africa Anglophone teaching course at the 4th AEC pre-congress in Kampala, Uganda- August 2019.
- To annually support participation of African trainees in Epilepsy distance learning courses (eg. VIREPA, San Servolo) by provision of bursaries.
- Organize regional epilepsy awareness raising campaigns-for English and French speaking countries.
- To establish the Epilepsy research needs on the continent.
- Foster South to South Epilepsy related research collaborations in the region.
- To increase on the number of countries joining the ILAE on the continent.
- To continue the the bi-annual production of the News E-Report “Epilepsy News Africa”.
These results provide support for the importance of medication adherence and intensified AED treatment for patients with poorly controlled GTCS in the effort to reduce SUDEP risk and suggest that comedication with statins may reduce risk.
4 November, 2020
International consensus recommendations on the diagnostic work-up for malformations of cortical development
In this article, the international MCD network Neuro-MIG provides consensus recommendations to aid both expert and non-expert clinicians in the diagnostic work-up of MCDs with the aim of improving patient management worldwide.
28 October, 2020
The ILAE has continued to evolve over the past 110 years, seeking to fulfill its mission to provide healthcare professionals with the information to work toward a world where no person's life is limited by epilepsy. 2019 ILAE Annual Report: See the details of the accomplishments in reports from…
15 October, 2020
The Swiss League Against Epilepsy is using posters, online ads, a short film, and floor stickers to give people the important message that helping during a seizure is easy, and can prevent injury.
13 October, 2020
Please take a few minutes to complete the new survey and share it with your colleagues. The survey looks at current treatment practices in 6 typical early life epilepsy scenarios. Our aim is not only to show first and second line treatment preferences, but also to illustrate that we commonly use off-label drugs in childhood epilepsies.
9 September, 2020
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