The ILAE Wikipedia Epilepsy Initiative

Wikipedia is the most commonly accessed source of health information by professionals and the lay public worldwide. Through its Wikipedia Epilepsy Initiative, the ILAE has a unique opportunity to convey through Wikipedia the most authoritative and up to date information on epilepsy, with the widest possible penetration and range, and in many languages.

The scope of work of the Wikipedia Epilepsy initiative involves two equally important activities:

  • Edit existing epilepsy-related entries – this is a central aspect of the initiative. The goal is to make entries accurate and authoritative, applying extensive references/links to appropriate publications, especially those that involve ILAE related materials on www.ilae.org or from ILAE’s three journals, and including open access articles, and applying language that is, as much as possible, understandable by non-professionals, in keeping with Wikipedia policy.
  • Create/solicit new epilepsy-related entries – these can take two formats: 1) Standard Wikipedia entries. 2) Full-featured professional quality articles that can be simultaneously published in Wikipedia and in open access journals such as Epilepsia Open or other Creative Commons-licensed journals. The second format is preferred when possible, as it provides the authors an opportunity for recognized authorship and contributes to their Curriculum Vitae.

In this novel and exciting Initiative, the ILAE calls interested medical students, physicians (residents/fellows/epilepsy experts) as well as other healthcare professionals and researchers to contribute! Please, get in touch with us at ilaewikipedia@ilae.org to learn about possibilities!

The people involved

Nicola Maggio, MD, PhD – Chief Editor, ILAE Wikipedia Epilepsy Initiative – Department of Neurology, the Chaim Sheba Medical Center and Department of Neurology and Neurosurgery, Sackler Faculty of Medicine, Tel Aviv University – Israel

Günter Krämer, MD - Chief Editor, ILAE Wikipedia Epilepsy Initiative

Selim Benbadis, MD, FAAN, FACNS – Senior Editor, ILAE Wikipedia Epilepsy Initiative – Professor of Neurology and Director, Comprehensive Epilepsy Program, University of South Florida and Tampa General Hospital, Florida, USA

Atul Maheshwari, MD - Senior Editor and American Epilepsy Society representative, ILAE Wikipedia Epilepsy Initiative – Assistant Professor, Department of Neurology, Baylor College of Medicine, Texas, USA

Shani Evenstein Sigalov - Chair, WikiProject Medicine Foundation – Educator, Lecturer and Researcher, Tel Aviv University, Israel

Amin Azzam, MD, MA – Wikipedian, Faculty Lead of the UCSF “Expanding Wikiproject Medicine” course – Clinical Professor, Department of Psychiatry, University of California San Francisco, California, USA.

James Heilman, MD – Wikipedian, Board of Trustees, Wikimedia Foundation – Clinical Assistant Professor, Department of Emergency Medicine, University of British Columbia, British Columbia, Canada.

Christos Lisgaras, PhD - Postdoctoral Research Fellow in Neurology, Albert Einstein College of Medicine - Saul R. Korey Department of Neurology, Developmental Epilepsy Laboratory

Completed Wikipedia Entries

Juvenile myoclonic epilepsy

Revised Wikipedia Entries

Reflex seizure

Psychogenic non-epileptic seizure

Work in progress

Atonic seizure

Epilepsy surgery

Management of drug-resistant epilepsy