COVID-19 information for epilepsy researchers
The pandemic has slowed or stopped much non-COVID-19 research, while studies focused on COVID-19 have ramped up quickly. Some changes have been positive: Ethics approvals no longer take months, and researchers are increasingly willing to collaborate with one another. But the pressure to release results has led to an increase in research being released without peer review or quality assessment.
Large COVID-19 trials, such as the Randomised Evaluation of COVID-19 Therapy (RECOVERY) trial in the United Kingdom and the Healthcare Worker Exposure, Response and Outcomes (HERO) trial in the United States, have already enrolled thousands. These studies—particularly the RECOVERY trial—may provide some insights into how COVID-19 affects people with epilepsy, though they are not explicitly designed to do so.
Outside of COVID-19, many research studies have slowed, and some labs have shut down. Balancing the health and safety of researchers against the lost time and resources, and the need to restart or even abandon experiments, has been difficult. While many clinicians can use telemedicine to stay in touch with their patients from their homes, lab research isn’t as portable.
Below we list resources and information for researchers on a variety of topics. Please contact us at firstname.lastname@example.org if you have resources or ideas for your fellow researchers.
ILAE COVID-19 and Epilepsy Research Award
The ILAE wish to recognize research that has been undertaken during the COVID19 pandemic. The award, one to be awarded to the best research, published or in press, for each ILAE region, will consist of a certificate and a monetary award of $500. Preference will be given to more junior principal investigators. Applications to include the reference to be submitted to email@example.com by 15th October 2021. Results will be announced in November 2021 in the ILAE newsletter, website and social media.
Working safely in the laboratory
Moving forward with clinical trials
What will clinical trials look like after the pandemic? Will COVID-19 lead to a more evidence-based perspective in medicine, or an eminence-based one? A perspective from Rob Califf, professor at Duke University and former commissioner of the US Food and Drug Administration.
US FDA Guidance on Conduct of Clinical Trials of Medical Products During COVID-19 Pandemic:Guidance for Industry, Investigaors, and Institutional Review Boards
Healthy working from home
Psychology of successfully working from home (Anna Cox, YouTube)
Seven tips to manage mental health during the pandemic (26 March 2020, Nature)
The funding landscape for non-COVID-19 research
Funding agencies are allowing flexibility, both in terms of ongoing grants that can be propagated and of new grants
Global research on COVID-19 (World Health Organization)
The RECOVERY trial (Randomised evaluation of COVID-19 therapy)
The HERO registry (Healthcare Worker Exposure Response & Outcomes)
Research in context: Online tool tracks positive and negative citations of COVID-19 literature
Open science and the COVID-19 pandemic (Nature, 24 April 2020)
SARS-CoV-2 / COVID-19
COVID-19 - Data sharing and accelerating knowledge
Virus Outbreak Data Network (VODAN) – Federated AI-ready repository of COVID-19 data adherent to FAIR principles
Call to Action to the Tech Community on New Machine Readable COVID-19 Dataset - CORD National Library of Medicine (NLM) at the National Institutes of Health: a machine-readable Coronavirus literature collection available for data and text mining
COVID-19 Open Research Dataset Challenge (Kaggle) - a series of important questions designed to inspire the community to find new insights about the COVID-19 pandemic including the natural history, transmission, and diagnostics for the virus, lessons from previous epidemiological studies, and more.
COVID-19 Research Articles Downloadable Database – Stephen B. Thacker CDC Library
iSearch COVID-19 Portfolio, NIH - daily updated collection of COVID-19 related articles from PubMed and pre-print servers
SARS-COV-2 research materials BEI Resources (NIAID, National Institute of Allergy and Infectious Diseases)
NCBI Virus, SARS-CoV-2 data hub – Search, retrieve and analyze SARS-CoV-2 GenBank data
COVID-19 clinical research data
ClinicalTrials.gov clinical trials on COVID-19
COVID-19 Community Vulnerability Index Map (Surgo Foundation)
The COVID Tracking Project – Tracking tests, cases, hospitalizations, outcomes
COVID-19 dashboard (Center for Systems Science and Engineering)
Johns Hopkins Coronavirus Resource Center – Tracking tests, cases, outcomes globally and in US
COVID-19 – Research funding
Funding opportunities, flexibilities to applicants and strategic plans
National Institute of Neurological Disorders and Stroke (NINDS) – Funding opportunities
COVID-19 Funding Opportunities (Johns Hopkins University)
ERAvsCorona action plan: short term coordinated research and innovation actions
European Research Area (ERA) corona platform – funding opportunities at European Union and national level
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