Global Advocacy Council

Mandate

To work within the framework of the ILAE Strategic Plan and Mission to oversee all aspects of ILAE Global Advocacy. The Council will make recommendations to the Executive Committee on strategies to enhance the quality, relevance, and profile of ILAE Global Advocacy activities, steps needed to stay abreast of needs and opportunities for Global and Regional Advocacy initiatives, and the prioritization of activities. The Council will encourage the implementation of IGAP goals. It will work closely with the World Health Organization. It will monitor the impact of ILAE’s investments in the chapter programs aimed at addressing the epilepsy treatment gap. The Council will help create and distribute resources and strategies to meet ILAE‘s global goal that 90% of persons with epilepsy will be diagnosed, 80% treated, and 70% seizure free.

Criteria for Appointment of Members and Chair

In addition to the process ocument entitled Structure of ILAE Organizational Entities, the criteria for appointing Chair and Members are as follows:

Chair: Will have served in the Global Advocacy Council during the previous term.

Members: One representative from each Region, preferable Chairs (from Europe -the Chair or the Representative of the EAE). One YES member. One member from WHO. The presidents of the ILAE and IBE. One additional member from IBE. Representative of the Research Advocacy TF. Members will serve for the duration of their term in the office they represent.

Up to 4 persons, who had substantially contributed to the WHO/Global outreach activities and have outstanding experience and skills in the development of the WHO-ILAE-IBE documents, communication with the Member States and High-level Healthcare authorities and the WHO leadership. (proposed by chair in consultation with the President)

All members will serve for one term only, unless appointed as Chair

Global Health in Epilepsy Database

An initiative to identify and connect international projects aimed at reducing the global epilepsy treatment gap, the database displays ongoing, completed, and upcoming projects.

The goals are to increase collaboration, amplify impact, reduce redundancy, engage possible funders, and identify service opportunities.