SNOMED International

Collaboration agreement between SNOMED International and the International League Against Epilepsy will raise the clinical quality of global epilepsy terminology

14 September, 2022

SNOMED International

SNOMED International and the International League Against Epilepsy (ILAE) have signed a five-year agreement that will contribute to global improvements in care and services for people with epilepsy, a group of disorders characterized by recurrent seizures.
The ILAE Commission for Big Data and SNOMED International have established an Epilepsy Clinical Project Group. Members of this group will work together to define processes to maintain and update epilepsy content within the international edition of SNOMED CT’s clinical terminology, the world’s most comprehensive healthcare terminology product.   
“Establishing accurate, up-to-date clinical terminology for the epilepsies provides a universal language for care, facilitating more efficient and effective healthcare delivery, as well as quality research,” said Prof J. Helen Cross, President of the ILAE in welcoming this collaboration.
Over 50 million people worldwide have epilepsy, making it one of the most common neurological diseases globally. Although about two-thirds of people with epilepsy could be seizure free with medication treatment, gaps in diagnosis and treatment mean that millions of people continue to have seizures, which affect their health, relationships, education, and employment opportunities.
The SNOMED CT International Edition has included epilepsy content for many years; now, users will benefit from new standards for updating and retiring epilepsy content. These standards will have a significant impact, as SNOMED CT is now published at the end of every month.
“So many people’s lives are affected by the impact of epilepsy, whether personally or through family and friends,” said SNOMED International CEO Don Sweete. “Formalizing our long-standing relationship with the ILAE enables us to better support the global community of healthcare providers, researchers, patients and others who treat, study or live with this disease.”
Visit the ILAE’s Commission for Big Data and SNOMED International’s Epilepsy Clinical Project Group for more information.

About ILAE
Established in 1909, ILAE aims to ensure that health professionals, patients and their care providers, governments and the public world-wide have the educational and research resources essential to understanding, diagnosing and treating people with epilepsy. The organization has published a classification of the epilepsies , as well as classifications of seizure types] and epilepsy syndromes . ILAE supports chapters in more than 125 countries.
About SNOMED International:
SNOMED International is a not-for-profit organization that owns and develops SNOMED CT, the world's most comprehensive healthcare terminology product. We play an essential role in improving the health of humankind by determining standards for a codified language that represents groups of clinical terms. This enables healthcare information to be exchanged globally for the benefit of patients and other stakeholders. We are committed to the rigorous evolution of our products and services, to deliver continuous innovation for the global healthcare community. SNOMED International is the trading name of the International Health Terminology Standards Development Organisation (IHTSDO.)

Media Inquiries:
Kelly Kuru
SNOMED International
Nancy Volkers
International League Against Epilepsy