Transition in Epilepsy – A survey for patients and healthcare practitioners
ILAE Taskforce on Transition
7 September, 2021
About the study
Transition from pediatric to Adult Healthcare System proves difficult for many youths with epilepsy and their families. There are significant difficulties in establishing and maintaining transition programs in epilepsy. Poorly organized transition programs in epilepsy may be associated with poor seizure control, undiagnosed comorbid conditions, along with poor psychosocial outcomes. A successful transition involves engagement and participation of the entire medical team, including physicians, nurses, nurse practitioners, social workers, the family, and any other caregivers, and most importantly the young person collaborating in a positive and mutually respectful relationship.
The purpose of the study is to understand the patient/caregiver and healthcare professional’s perspective of transition in epilepsy and the barriers experienced.
Healthcare practitioner questionnaire
If you are a healthcare provider that cares for patients with epilepsy, you may be eligible to participate. The study involves filling a questionnaire and only 15-20 minutes of your time.
If you or a family member has epilepsy, you may be eligible to participate. The study involves filling a questionnaire and only 20-25 minutes of your time.
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