Chapter Name: Ligue Francaise contre l'épilepsie
Report By: Board of Directors
Summary of Activities:
LFCE progress report Nov 2017/Oct 2018
Members of the Board of Directors: Stéphane Auvin, Fabrice Bartholomei, Stephanie Baulac, Hélène Brissart, Serge Chassagnon, Philippe Derambure, Sophie Dupont, Edouard Hirsch, Virginie Lambrecq, Louis Maillard, Cécile Marchal, Benoit Martin, Renaud Michel, Vincent Navarro, Marie-Christine Picot, Marielle Prevos- Morgant, Sylvain Rheims, Philippe Ryvlin, Louise Tyvaert.
The LFCE Board of Directors met at the JFE in Marseilles, France in 2017, and then in May 2018 in Lyon, France.
1. The President's report
The President, Philippe Derambure highlighted:
- the work with the public authorities (task force, revaluation of the EEG pricing, MEG pricing)
- the work of the different LFCE commissions (advanced practice nurse, communication, scientific council, training, therapeutic education, telemedicine, psychiatry in constitution) that still needs to be optimized
- the reconciliation with other Scientific Societies: SFN and the French Federation of Neurology
- the necessary questioning of the independence from the industry or of its transparency in case of partnership
Since May 2018, between meetings of the Boards of Directors, the bureau consisting of:
- Treasurer B Martin
- Scientific Committee : S Rheims
- International Affairs : Ph Ryvlin
- Communication: V Lambrecq
- IDE (nurse practictionner): M Prevos-Morgan
- Networks: F Bartolomei
- Secretary General: S Dupont Has held regularly conference calls.
Several points should be noted:
a) an active redesign of the LFCE website is underway to enhance the visibility of the LFCE and its actions, to provide a forum for the actions on epilepsy. The tender was handed to Expression santé. Three website sections, currently being drafted, were decided:
- General public section (LFCE officials: Laurent Vercueil, Virginie Lambrecq)
- Professionals public section (LFCE officials: Louise Tyvaert, Sophie Dupont)
- Members section (LFCE officials: Nathanaëlle Touchon, Benoît Martin)
b) following the discontinuation of "Cahiers de l'Épilepsie" (Journal of the LFCE), articles related to oral communications selected from the JFE could be published in the "Revue Neurologique" (special issue or dossier according to the numbers of articles received). The applications have been made and accepted by the authors, we are awaiting the return of the articles (LFCE officials: Sylvain Rheims, heads of Revue Neurologique: Laurent Vercueil, Sophie Dupont)
c) scientific council: the grants: this year, 3 grants will be awarded, 11 files re- submitted, the oral assessment was made on 07/06/2018 in Lyon, France by a jury composed of scientific council members after a first assessment of the files. The three winners will be announced at the JFE.
- The JFE in Marseilles took place from October 9 to 12, with great success and substantial financial surpluses. The subsequent JFE took place in Lyon from October 16 to 19, 2018. A call for poster or oral presentations has been launched; the free communication session is again jointly organized with the Jean Bancaud's day. Paris has been selected for the JFE 2019.
- JNLF: on the agenda of the LFCE session in 2019, practical epileptology workshops with only clinical cases, a video session and a scientific session on the management of the first seizures will be organized
- A French application for the organization of the European Congress of 2020 being considered, will require postponing the JFE that year
4. Task Force:
Several meetings were held with Emmanuelle Alloneau-Roubertie, at the French Ministry of Health.
The HAS (French National Health Authority) mandated the LFCE to:
- Write a guide for the care management pathway for epilepsy (in association with the FFN (French Federation of Neurology), the CNAM (French national health insurance fund) and the HAS).
- Write a recommendation on the management of epilepsies in adults and children (the bibliographic referencing started)
- The DIU (inter-university diploma): the annual examination is validated for the new school year in 2019 with web-based course platform and hands-on sessions of clinical cases and exchanges of experiences to be organized locally. Thus, classes still need to be recorded in the meantime.
- We are still thinking about obtaining an ODPC (Continuing Professional Development Organization). Reconciliation took place with neuroDPC (an arm of the FFN) with Thomas de Broucker and Guy Chauplannaz. NeuroDPC has been approved in early April, and enables the societies to register through it. Several types of programs, FMC and assessment of practices already exist. This might help avoid (in part) the cumbersome DPC file.
- Telemedicine: Pr T Moulin: president of the Société Française de Télémédecine - (referent Scientific Society for telemedicine in France) proposes a partnership with the LFCE (in return for a membership financial contribution that was approved by the LFCE). As a reminder, the Société Française de Télémédecine (SFT) was founded in 2007 with 4 fields: scientific (medical, relation with Scientific Societies), ICT-engineering, professional health organizations (boards, associations, and institutions), law/economy/human and social sciences. The common projects would deal first with: 1) advice on the EEG practice in telemedicine, 2) epileptologic teleconsultation in connection with the transmission of the EEG. A telemedicine working group was chosen to interact with the SFT: VN, SA, CM
6. International affairs:
As a reminder, E Trinka is the new European chair and Sam Wiebe is the new president of ILAE. The European Young Investigator Award was given to Sylvain Rheims, and E Perrucca received the life achievement award
7. Therapeutic education, nurse practitioner (IDE)
- The TPE (Therapeutic Patient Education) Commission and the TPE seminar were successfully conducted this year in Lyon, France, with many registrants. The next session will take place in Paris.
- The other healthcare professionals’ session at the JFE works perfectly.
- The decree is published on IS status. The objective is to integrate nurse practitioners (IDE) in the management of epilepsy patients, to improve the organization of health care, and to reduce the stigma of epilepsy. In order to obtain an IS status, a TPE training (40 hrs.) and an 88-hour training in clinical reasoning are required.
- The status of IPA (advanced practice nurse practitioner) was also formalized: it requires an additional and nationally recognized training (master 2) and wage increase. The epilepsy is part of the chronic disease module proposed in the training.
8. Neuropsychology guidelines
As a reminder, the aim is to harmonize practices in neuropsychological assessments performed during the surgical treatment. A working group was established and met twice during the JFE. It should initially work as recommended by the HAS for the recommendations of clinical practices but this was impossible due to the low level of evidence of the selected articles. Thus, another methodology will be implemented more in line with expert opinion. An additional budget of €12,000 was allocated for pursuing this task (2018-2019).
9. Financial report
The result of the JFE in Marseilles shows a larger surplus in the financial balance. The number of small partnerships rises during the JFE, but we bear in mind a reduction of the number of contributors, donations and an increase in meeting costs, website cost....
Officer Election Date: n/a
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