Chapter Name: Romanian Society Against Epilepsy (SRIE)
Report By: Dana Craiu, Romanian Chapter President

Publications:

NAP

Summary of Activities:

2019

7 FEB 2019: Workshop “Transition in Epilepsy” https://ilae-romania.ro/tranzitia_in_epilepsie2019/
Invited Speakers:: Eugen Trinka, Helen Cross, Sophia Varadkar, Anni Saarela, Dragoslav Sokic, Masa Malenica, Stanislav Groppa, Petia Dimova

7 MAR 2019: Masterclass de epilepsii rezistente (M1) https://ilae-romania.ro/masterclass2019/
Invited speakers: Lieven Lagae, Zvonka Rener Primec

11-13 Jul 2019 East European Course of Epilepsy 5 - SRIE Summer School https://ilae-romania.ro/scoala_vara_2019-2/
speaker invitati:Silvio Basic (Croatia), Stanislav Groppa (Republic of Moldova), Anca Nica (Pasnicu) (France), Dragoslav Sokic (Serbia)

2 OCT 2019: Masterclass on resistant epilepsies (M2) – https://ilae-romania.ro/masterclass2019m2ro/
Invited speaker: Massimiliano Boffini

13-16 NOV 2020: The XXVIIth Annual SRIE Conference https://ilae-romania.ro/conferinta-srie-editia-a-xxvii-2/

• 13 nov 2019 Zi dedicata asistentelor medicale, studentilor si medicilor rezidenti (Day dedicated to the nurses, students and resident doctors)
• 14-16 nov 2019 Conferinta (SRIE Conference)
• speaker invitati: Sophia Bakhtadze, Lorella Minotti, Daniel Fabo, Marie Pierre Noto

2020

2020 – series of movies about epilepsy for patients and public with Sanatatea Group and published online

1. Dana Craiu – first seizure – what to do: https://rohealthreview.ro/video-prof-dr-dana-craiu-vorbeste-despre-prima-criza-epileptica-la-copil/
2. Dana Craiu, Ioana Mindruta: Epilepsy forum purpose: preparing the Epilepsy Day 2020: https://rohealthreview.ro/prof-dr-dana-craiu-forumul-de-epilepsie-speram-sa-reuseasca-sa-schimbe-ceva-pentru-pacientii-cu-epilepsie/ and https://rohealthreview.ro/dr-ioana-mindruta-despre-forumul-de-epilepsie-este-o-oportunitate-a-aducem-la-masa-discutiei-atat-profesionistii-din-domeniul-medical-cat-si-autoritatile-si-pacientii/
3. Ioana Mindruta – about COVID 19 and epilepsy: https://rohealthreview.ro/video-dr-ioana-mindruta-despre-provocarile-in-abordarea-pacientului-cu-afectiuni-neurologice-in-perioada-pandemiei-de-covid-19/

11 FEB 2020: Romanian Epilepsy Forum organized for Epilepsy Day
Huge meeting getting together the minister of health, the insurance system President, the chairs from the sennat and Deputy Chambers in the Parliament, the Chair of the Medical Commission of the Sennat and representatives from different patients epilepsy associations, sitting and discussing epilepsy problems together

• Whole meeting: https://rohealthreview.ro/live-forumul-de-epilepsie-aproximativ-300-000-de-persoane-sufera-de-epilepsie-in-romania/
• The Minister of Health talk: https://rohealthreview.ro/ministrul-sanatatii-avem-nevoie-de-un-pact-pe-epilepsie1/
• The insurance system President talk: https://rohealthreview.ro/video-presedintele-cnas-despre-tratamentele-pentru-pacientii-cu-epilepsie/ and https://rohealthreview.ro/cnas-decontarea-tratamentul-pentru-epilepsie-a-fost-de-40-milioane-lei-in-2019/
• Dana Craiu’s Talk: https://rohealthreview.ro/dana-craiu-50-de-milioane-de-oameni-afectati-de-epilepsie-la-nivel-global/
• Iana Mindruta’s talk: https://rohealthreview.ro/ioana-mindruta-este-momentul-sa-oferim-copiilor-mai-multe-sanse-pentru-a-si-controla-mai-bine-epilepsia/
• President of Health Commission of the Deputy Chamber: https://rohealthreview.ro/corneliu-florin-buicu-sanatatea-este-o-investitie-si-nu-o-cheltuiala
• President of the Health Commission of the Sennat: https://rohealthreview.ro/laszlo-attila-nu-ar-trebui-facute-sacrificii-materiale-din-partea-pacientilor-de-epilepsie-sau-a-apartinatorilor/
• Chair of the quality management in health: https://rohealthreview.ro/vasile-cepoi-imi-place-sa-cred-ca-anmcs-va-reusi-sa-devina-medicul-sistemului-de-sanatate/
• Ambulance service President: https://rohealthreview.ro/cristian-grasu-lantul-supravietuirii-pentru-pacientii-cu-epilepsie-incepe-intotdeauna-la-112/

28 MAR 2020 MEETING with Parent’s associatiation for Dravet - For Purple Day of Epilepsy – Discussing about Epilepsy and COVID19
(movie from Zoom attached)

4-7 Nov 2020 SRIE The XXVIIIth Annual SRIE Conference - all on-line https://conferinta-srie.ro/

4 Nov - EEG for beginer physicians and Nurses course

5-7 Nov Conference SRIE
Invited speakers: Helen Cross , Monika Eiserman, Ingrid Scheffer, Tally Sagie, Johannes Lemke, Luca de Palma, Kees Braun, Lorella Minotti, Eugen Trinka

Challenges:

COVID 19 limitations 2020

Future Plans:

2021 PLANS

28 FEB: Rare disorders Day – EpiCARE center Obregia participation with talks

• Initiation of Romanian Network for epilepsy with specialists and centers all over Romania discussing the most difficult cases (weekly meetings) with the specialists from the EpiCARE center Bucharest and if not solved – to use CPMS and European network’s meeting
• Initiation of a website for rare disorders in pediatric neurology, in which Rare epilepsies will be a big part – EpiCARE center and informations for parents and pecialists on different rare epilepsies among the other disorders

26 March – Purple day for epilepsy

• Epilepsy SRIE Conference 2021
• Discussions with the new Health Minister on Epilepsy antiepileptic medications which are not available in Romania; Off label use of drugs – proposal to use in the Centers of expertise for rare disorders

Officer Election Date: Nov 2023