Chapter Name: Slovenian ILAE Chapter
Report By: Natalija Krajnc, President
Publications:
Stated in the report
Summary of Activities:
Slovenian ILAE Chapter has celebrated the 30th anniversary of its independent work in 2020; We have planned the ceremony and cultural event in Sept-2020 in association with the symposia »13th International postgraduate epilepsy school in the tradition of Ecole Pratique Jean Bancaud« but the event had to be cancelled due to pandemics (postponed to Sept-2021).
Lectures about epilepsy for laic community and patients:
- We have continued established activities with regular lectures for relatives of persons with epilepsy, separatedly for parents/relatives of children with newly diagnosed epilepsy, for teachers in schools / kindergartens, non-governmental societies: 22 lectures in 2020.
Symposia for health professionals: - !3th International postgraduate epilepsy school in the tradition of Ecole Pratique Jean Bancaud., planned for Sept-2020 was cancelled due to pandemics, postponed to Sept-2021
Support with accompanying persons for patients referred for presurgical evaluation/epilepsy surgery abroad: The unique program started in 2005 and about 280 assistances were provided so far
- 7 referrals assisted (some patients postponed due to Covid-19 pandemics)
Supporting self-help groups of patients:
- groups active in 5 cities (Ljubljana, Koper, Nova Gorica, Kranj and Novo mesto)
- internet activities (zoom meetings) started in 2 cities for facillitation (Maribor, Celje)
- meeting of all group members in Nova Gorica
Contact phone EPITEL:
- available once- a- week regularly
Printed/media materials:
- journal of our Chapter named »Žarišče«: one issue per year
- posters related to International Epilepsy Day
- 30th Anniversary of Slovenian ILAE Chapter monography published
- Video of our Chapter activities prepared for Web presentation
- Web site: anouncements about activities and links.
Events related to International Epilepsy Day:
- press conference for media
- interviews for media (written, oral)
- cultural event for the public in Ljubljana, attributed to performing arts
- video clip prepared fot the TV promotion of Intarnational Epilepsy Day
- poster promotion nation-wide
- literary contest (story or poem)
Active participation in IBE Europe with our representative Ljubica Vrba.
Financial support for these activities is provided by donations, projects of Humanitary Foundation and Ministry of Health.
Challenges:
To continue the established activities of all programes, at he pandemics situation in virtual form more frequently as before
Future Plans:
To continue the established activities of all programes.
Officer Election Date: Mandate of our Executive board since 2018, 4 years
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