Chapter Spotlight: Georgia

The GLAE was founded in 1997 and was announced as a chapter of the ILAE on the 22nd International Epilepsy Congress in Dublin, Ireland (1997).

Chapter Goals:

  • Promote quality medical and psycho-social care for persons suffering from epilepsy;
  • Implement diagnostic and treatment innovations in Georgia;
  • Increase the awareness of medical and psycho-social issues on epilepsy by the elaboration of qualitative curriculums, teaching materials, guidelines and protocols on epileptology (for students and residents as well as for physicians, basic researchers, psychologists, pharmacists, social workers, teachers);
  • Organize local and international conferences, workshops and summer-schools on epilepsy;
  • Enhance local and international research on epileptology.

Activities (2013-2015)

For Professionals:

Conferences and meetings:

  • ILAE/CEA-GLAE International Caucasian Summer School (2014, every two years).
  • International Conference devoted to 65th anniversary of Georgian Clinical Neurophysiology (2013)
  • International Conference “New Horizons on Epilepsy” (2014, every two years).
  • Local Meetings of GLAE members (every year).
  • Educational events – round table on the base of Epilepsy Prevention and Control Centre (Institute of Neurology and Neuropsychology and Iashvili pediatric clinic) (every month)
  • Conference on new antiepileptic drugs (tree in 2013, three in 2014)

Research

Local

  • Epidemiology and risk-factors of pharmaco-resistance epilepsy In Georgia (Founded by the Shota Rustaveli National Scientific foundation)
  • Rare epilepsy syndromes (Founded by the Shota Rustaveli National Scientific foundation)
  • Sleep disorders in children with epilepsy (Founded by the Shota Rustaveli National Scientific foundation)
  • Quality of life in people with epilepsy in Georgia and Turkey: a comparative study (Founded by the Shota Rustaveli National Scientific foundation and Embassy of Turkey in Georgia)
  • Detrimental effect of utero exposure an antiepileptic drugs on the cognitive functioning in later stages of life (Founded by the Shota Rustaveli National Scientific foundation)
  • Analyzes the data’s of national epilepsy registry (ones per year)(Georgian State Program on Epilepsy).
  • Thesis on Risk-factors for the outcome of convulsive status epilepticus in children.
  • Thesis on Epidemiology of Epilepsies in Georgia (Demonstration Project on Epilepsy and Georgian State program on Epilepsy)
  • Thesis on Quality of Life in people with epilepsy living in Georgia (Demonstration Project on Epilepsy and Georgian State program on Epilepsy)

International

  • EURAP
  • EpiNet
  • EEG-SCORE
  • Antiepileptic drug trial (Lacozamide)

Publications

  • Kobulashvili T., Lomidze G., Kasradze S., Sander J.W. Premature mortality in a Georgian cohort of people with epilepsy. Epilepsy Research (2013) 107, 318-322.
  • Gzirishvili N., Kasradze S., Lomidze G., Okujava N., Toidze O., de Boer HM., Sander JW. Knowledge, attitudes, and stigma towards epilepsy in different walks of life: a study in Georgia. Epilepsy Behav. 2013;27(2):315-8.

Education

Published Guidelines (in Georgian)

  • on prevention, diagnosis and care of epilepsy
  • on EEG investigations for technicians

Published Protocols (in Georgian)

  • screening-protocol for epileptic seizures
  • protocol for screening of epilepsy
  • protocol of MRI investigation for adult people with epilepsy
  • Protocol of MRI investigation for children with epilepsy
  • protocol for status epilepticus in children
  • protocol for status epilepticus in adults
  • protocol for management of pharmacoresistant epilepsy
  • protocol for management of West syndrome
  • protocol for pregnancy management in women with epilepsy
  • protocol for EEG Investigation
  • protocol for behavioral testing during seizures
  • protocol for video-EEG telemetry
  • protocol for Clinical management of children on ketogenic diet

Prepared and acknowledged with MoH of Georgia “Curriculum on Clinical Electroencephalography”.
VIREPA-courses –young physicians were trained on

  • clinical epileptology
  • Neurovisualisation
  • EEG investigations (basic, clinical –pediatric/adults, sleep-EEG, EEG-score)
  • genetics of epilepsy

Services

  • Multidisciplinary (neurologist-epileptologist, neuropsychologist, psychiatrist, standard EEG, high resolution MRI) diagnoses in specialized epilepsy center by the National Guidelines and Protocols (pediatric/adults); more than 40% of people with epilepsy living in Georgia are investigated and registered in Epilepsy Registry (since 2005)
  • Drug monitoring (All old and new AEDs, some newest AEDs)
  • Video-EEG monitoring (since 2014).
  • EEG -Telemetry and pre-surgical evaluation of persons with pharmacoresistant epilepsy (36 cases) (since 2014).
  • Starting of Epilepsy Surgery in collaboration with professionals from Turkey (Ozkara C., Uzan M.) - two adult cases were operated in Georgia; four Georgian patients were operated in Turkey (one child, three adults) (2014).

Social events

  • Organizing of “European epilepsy day” (2013, 2014, 2015)
  • Organizing “World Epilepsy Day” in collaboration with patient’s association “LOCUS”, “Georgian Association of Young Epileptologists” (Ass. member of IBE) and Epilepsy Prevention and Control Centre.
  • Concert of charity for supporting of people with epilepsy in France organized by Georgian Diaspora and family members of people with epilepsy living in France.
  • TV-broadcasts on epilepsy (seven in 2013, twelve in 2014, six in 2015)
  • Radio broadcasts on epilepsy (eleven in 2013, six in 2014, seven in 2015)
  • Trainings for regional school teachers on first aid of epileptic seizure (11 schools in Batumi, 7 schools in Telavi).

Officers