Ictal Registry for Status Epilepticus

ICTAL Registry is a multicentre open cohort of critically ill patients with convulsive, non-convulsive or psychogenic non-epileptic SE. Observational methods are applied to collect uniform data. The goal of the ICTAL Registry is to collect high-quality information on a large number of patients, thereby allowing elucidation of the pathophysiological mechanisms involved in mortality and morbidity. The registry structure is modular, with a large core data set and the opportunity for research teams to create satellite data sets for observational or interventional studies (e.g., cohort multiple randomised controlled trials, cross-sectional studies and short-term and long-term longitudinal outcome studies). The availability of core data will hasten patient recruitment to studies, while also decreasing costs. Importantly, the vast amount of data from a large number of patients will allow valid subgroup analyses, which are expected to identify patient populations requiring specific treatment strategies. The results of the studies will have a broad spectrum of application, particularly given the multidisciplinary approach used by the IctalGroup research network.

Project Status: Ongoing
Start Date: January 1, 2018
Proposed End Date: January 1, 2028
ILAE Region: Africa, Asia & Oceania, Eastern Mediterranean, Europe, Latin America, North America
Language(s): English
Location: France, IctalGroup non-profit organization
Principal Investigator / Organizer: Stephane LEGRIEL
Contact Person: Stephane LEGRIEL, IctalGroup non-profit organization, stephane.legriel@ictalgroup.org
Patient Age: Adult
Project Type(s): Research
Funding Source(s): Personal, Faith Based
Project Need(s): Funding and collaboration
Publications Associated with the Project: PMID: 35168989, 36803873, 36533915, 30176574