Spotlight on Rare and Complex Epilepsies – Nursing Considerations and Educational Needs

8 November 2023,  20:00 - 21:00 Coordinated Universal Time

Replay Webinar

8 November 2023: US West Coast 12:00 | US East Coast 15:00 | UK 20:00 | South Africa 22:00 |

9 November 2023: Australia East Coast 07:00

People with a rare epilepsy syndrome or epilepsy and multiple comorbidities need multidisciplinary care that can address the many care and support needs. Nurses are an integral member of these teams providing clinical care, education, support, advocacy, and care coordination for individuals and families. This session will highlight needs and approaches to improve care for patients and families living with rare and complex epilepsies.

Topics & Speakers

  • Lived Experience – The Rare Epilepsies - Gabrielle Conecker, MPH, Executive Director and Co-Founder of Decoding Developmental Epilepsies - home of the International SCN8A Alliance and DEE-P Connections (USA)
  • Nurse led Epilepsy Services: Australia Experience - Brialie Forster, MN, GradDipN, Clinical Nurse Consultant for Developmental and Epileptic Encephalopathies and Ketogenic Diet Therapies, Austin Health (Australia)
  • The Development of a Dedicated Working Group in ERN EpiCARE - Nicola Openshaw-Lawrence, RN, ERN EpiCARE (UK)

Moderators: Nancy Santilli and Melissa Bartley

Organizer: Nursing Section

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