Epigraph Vol. 17 Issue 1, 2015
EpiNet (www.epinet.co.nz), an international collaborative clinical epilepsy research project endorsed by the New Zealand Chapter, continues to seek participation from ILAE chapter members. Current studies include "What is a seizure," which is an online study designed to determine how consistently physicians interpret case histories. It involves 32 case histories with different clinical presentations. Everyone who completes the 32 cases before the end of March 2014 will go into the draw to win a holiday of a lifetime in New Zealand.
EpiNet comprises a secure patient database, into which doctors can enter details on any person with epilepsy. It can be used by doctors from any country, provided they get approval from their IRB or other relevant authority. Currently, there are over 5000 patients in the EpiNet database. Patients have been registered from 20 countries. The platform has been created to facilitate investigator-led research, and in particular to perform simple, multi-center, pragmatic randomized controlled trials.
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